Search results for: cannabis

I wake with loads of tremor in my left leg.  It seems worse than before I had my device reprogrammed on Friday, but my Group “B” settings (which I switch my device to at bedtime, because Group “A” settings give me dyskinesia and restless legs during the night) haven’t been changed.  I switch my neurostimulator over … Continue reading “2017-03-12 – Making adjustments.”

We didn’t get back home from London until almost midnight last night, and by the time we had had baths and got to bed it was closer to 1am, so we feel no guilt at lying in bed until just after 9am this morning.  We need to get over to my wife’s workshop in Hevingham … Continue reading “2017-03-11 – A roofing repair.”

It looks to be a bright Spring-like day when we get up just after 8.30am, but by 10am it has clouded over and is spitting with rain.  A quick check of the weather forecast shows that there is to be no progress on re-felting the roof of my wife’s workshop today – it is scheduled … Continue reading “2017-03-05 – Fretting.”

We have a busy day ahead of us.  My wife wants to go over to Hevingham to work  in her youngest son’s garden (he has had a tree pruned, and all of the trimmings are lying in the garden).  We also have to repair the roof of her workshop (storm Doris has ripped some roofing … Continue reading “2017-03-04 – Producing wood chips!”

Up at 7.30am following another good night’s sleep. Tea, Nutriblast, Dog walk and PopMaster set me up for the day. I’m busily tweeting away from the @parkinsons52 Twitter account this morning, when the phone rings.  I am half expecting someone from Baroness Meacher‘s office to call me, following a discussion that I had with the … Continue reading “2017-03-02 – A chat with Baroness Meacher.”

Being away from home, even for just one night, makes me appreciate the comfortable bed that we have at home.  I slept well. We get up at 7.30am.  My wife is out of the door on her way to work by 8.30am, and I settle down on the sofa with my iPad to respond to … Continue reading “2017-02-28 – Tweeting about Parkinson’s.”

We are off to Derbyshire today to visit my wife’s granny, who will be 97 tomorrow. So we are up and out of the house by 7.45am, leaving my daughter to look after the house. We drive to Hevingham where we are relinquishing control and being driven by my wife’s youngest son and his fiancee. … Continue reading “2017-02-26 – Off to Derbyshire.”

I didn’t do any more editing on my “DBS on/DBS off” video today, but I did manage to script, film, edit and publish my latest vlog to my YouTube channel, so I’m really pleased about that – especially since the subject matter of the vlog is motivation, apathy and depression! My daughter is arriving this … Continue reading “2017-02-24 – A motivational vlog.”

I slept really well last night – cannabis is medicine!  I am going to spend the day editing video, and I’m looking forward to it (with some trepidation) – I think there’s a lot of editing to be done in turning my captured footage into a watchable video. I make the tea and coffee.  My … Continue reading “2017-02-22 – Editing video.”

I’m feeling a lot more positive today, like I’ll actually be able to achieve something!  I had a reasonable night’s sleep last night, in spite of forgetting to self-medicate with cannabis.  I got off to sleep okay, but woke at 4am, and then only dozed until the alarm went off at 7am. My wife leaves … Continue reading “2017-02-21 – More positive today!”

I had a good night of (cannabis assisted) sleep, not waking until just after 6am, and then snoozing until the alarm went off at 7am.  I resist the temptation to leap out of bed until almost 7.30am, and then get dressed and go downstairs to give the dog her breakfast and make the tea/coffee. I’m … Continue reading “2017-02-20 – A list of tasks”

We decide to try to progress the renovation of our cottage today, by finding a bath.  This renovation has been ongoing since I bought the cottage in 2011,  a month or two before I was diagnosed with Parkinson’s Disease.  We moved in here almost 2 years ago with just the kitchen and bathroom still in need … Continue reading “2017-02-18 – Finding a bath.”

After the hubbub of people in the house yesterday, I am craving a day of peace and quiet – just the wife and I, 1 dog and a blazing fire.  I’m feeling unsociable today! My wife is going swimming with our granddaughter this morning, so she is out of the house by 9.30am.  It’s a … Continue reading “2017-01-12 – Feeling unsociable”

We have a film crew in the house this afternoon – Patient Zero Productions are coming to interview me for a documentary about cannabis, called The God Plant.  This means the house has to be cleaned from top to bottom this morning (says my wife). We get up at a reasonable time (for a Saturday), … Continue reading “2017-01-11 – The God Plant”

I managed to catch up with my sleep last night – we had an early night, I went straight off to sleep (with a little help from cannabis) and slept right through until shortly before the alarm clock went off at 7am. I intend to do some more filming for my “DBS on/DBS off” video … Continue reading “2017-02-01 – Just sitting around…”

I spent this morning catching up on my emails – I needed to write to my contact at the Cleveland Cannabis College about the video that I recorded for him, also to Karl Sterling who sent me an email about his Parkinson’s Regeneration Training program a couple of days ago, and last (but not least) … Continue reading “2017-01-28 – Making myself useful.”

I am still very shaky today, and dyskinesia is still making me very cautious as I drink my morning cup of tea.  Dystonia is under control.  Balance isn’t so bad, but walking is a little stilted today. My mood, motivation and energy have all been pretty good for the last few weeks.  Rigidity and muscular … Continue reading “2017-01-27 – Filming again”

I slept well again, getting off to sleep without too much trouble (cannabis helped!) and not waking until around 6.30am.  My wife and I both get up just after 7am, and my wife prepares my morning cuppa and Nutriblast before dashing off to work. I have quite a lot that I would like to achieve … Continue reading “2017-01-26 – A bad influence.”

I remembered to self-medicate with cannabis last night and, consequently, had no trouble in getting off to sleep (or staying that way).  I slept really well, and felt much more rested this morning than I have been of late.  Tremor is still breaking through on my left side (mainly my leg) but I’m not feeling … Continue reading “2017-01-25 – The God Plant”

We had an early night last night, but it took me ages to get off to sleep.  I had the same problem the night before – wide awake for ages, and then the restless legs kick in…  I meant to self medicate with a little cannabis before going to bed last night, but forgot to … Continue reading “2017-01-24 – Good neighbours.”

I’m definitely having a little more trouble in getting off to sleep just lately – even when I have self-medicated with cannabis.  I do hope this isn’t the beginning of disrupted sleep patterns.  I woke at 3am and 4am but got straight back to sleep.  My alarm went off at 7am, but I didn’t get … Continue reading “2017-01-13 – Slipping and sliding.”

I slept a little better last night, only waking once (at 5.30am) but going straight back to sleep until my wife’s alarm went off at 8am.  She is feeling a lot better this morning, and has decided she is well enough to go to work today.  Not really sure what I am going to do today … Continue reading “2017-01-12 – Catching up with stuff.”

My wife is ill.  I had a really bad night’s sleep, probably because my wife is ill.  I had terrible trouble getting off to sleep last night (even though I self-medicated with cannabis), and seemed to be awake for most of the night.  This morning my wife told me that she has the sickness bug … Continue reading “2017-01-11 – Preparing for colder weather.”

I’m awake at a tad after 5.30am and can’t get back to sleep.  I lie awake until 7.30 and then decide to get up.  I have an online interview scheduled for this afternoon with Karl Sterling from New York, who runs Parkinson’s Regeneration Training programs.  I haven’t finished preparing the answers to the interview questions that … Continue reading “2017-01-10 – An interview.”

I have a little more energy today, and my tremor, dystonia and dyskinesia are all back under control again.  I self-medicated with cannabis last night, so I slept soundly and recharged my batteries.  My sore throat is still around, but no worse than yesterday – I give it the “gargle with mouthwash” treatment, and it … Continue reading “2017-01-05 – Tidying myself up.”

I slept like a log last night – no cannabis required! We are having my wife’s family over for nibbles and drinks tomorrow afternoon, so we need to go and buy some food!  We go to Lidl and Sainsbury’s in North Walsham and purchase the necessary. While my wife is making sausage rolls, I get … Continue reading “2016-12-27 – Glad to be home.”

Boxing day!  I had another bad night, in spite of self-medicating with cannabis when we went to bed last night.  I put it down to being in a strange bed with a heavy quilt on it, meaning that I woke many times in the night, uncomfortable and overheated. We get up and go downstairs after … Continue reading “2016-12-26 – Boxing Day lethargy.”

Merry Christmas! We stayed at my wife’s youngest son’s house last night, and I’m definitely missing being in my own (very comfortable) bed. I didn’t have a particularly good nights sleep and was awake well before we got up at 6.45am. We are all round at my wife’s eldest son’s by 7.30am, opening presents and … Continue reading “2016-12-25 – Merry Christmas!”

I have a bit of a lie-in this morning.  I heard my wife get up (much) earlier, but went back to sleep.  When I do wake up, it’s almost 9am, and my wife is just about to leave for work.  It’s okay, though, because it’s only Thursday today – plenty of time to do what … Continue reading “2016-12-23 – Help! I’ve lost a day!”

I self-medicated with cannabis just before going to bed, so I had another good night of sleep.  Considering how well I have slept for the last 2 or 3 nights, I do have moments of almost overwhelming tiredness, and could easily fall asleep during the day (on occasion) if I didn’t fight it off. I … Continue reading “2016-12-19 – Preparing for tomorrow.”

I slept really well last night (because I self-medicated with cannabis just before going to bed), and slept right through until almost 9am.  My wife had a really good night’s sleep as well, and I put that down to the mug of hot chocolate that I made for her with CBD infused milk.  She says … Continue reading “2016-12-18 – Time for another adjustment.”

My wife seemed to have a much better night’s sleep last night.  She was awake early, but not that early (after 6am), so I am going to put that down to the cup of hot chocolate I made for her (with CBD infused milk) an hour before we went to bed. I am going to … Continue reading “2016-12-15 – Decarboxy-what?”

I had a better night’s sleep last night (I remembered to turn my device voltages down!).  I return it to daytime settings when I get dressed. Downstairs, I drink my tea and Nutriblast while my wife is getting ready to go to work.  I’m expecting someone to collect the wooden “thingummyjig” that I sold on … Continue reading “2016-12-12 – Thingummyjig gone!”

I had a fairly restless night.  I wasn’t lying awake, just conscious of having been thrashing about a bit from time to time.   It was only when I was getting dressed and went to change my device over to daytime settings, that I realised I hadn’t reduced the voltages last night when I came … Continue reading “2016-12-11 – Getting a tree.”

Another good night of sleep, thanks to self-medication with cannabis.  I have a busy day ahead of me – I want to edit and publish my review of the CBD tea infused milk, and then I have another appointment (the second one of the week) – this time it’s at the hospital rather than the … Continue reading “2016-12-08 – Another appointment.”

The CBD infused milk that I drank yesterday afternoon was effective for almost 12 hours, and was certainly useful to me in getting off  to sleep last night.  I didn’t have a bad night’s sleep (considering that my wife did have a bad night’s sleep) and only awoke briefly on a couple of occasions. Out of … Continue reading “2016-12-07 – My crumbling teeth.”

I have decided that I’m going to try making some CBD tea again.  The last time I tried it was when I was videoing a review of it several weeks ago, and I found it to be of minimal benefit to me.  I got chatting to someone online last night who convinced me that I … Continue reading “2016-12-06 – A change of opinion.”

Another decent night of sleep.  Not quite as good as the night before, but I only woke up twice (3am and 7am).  I think I was slightly more medicated the night before, which could explain it.  I’m feeling that I have a little more energy today. I leap out of bed (okay, it’s more of … Continue reading “2016-12-04 – Christmas shopping”

I self-medicated with some cannabis before coming to bed last night, and had the best night’s sleep I’ve had in ages – slept right through until almost 6.30am, and then went back to sleep again until gone 9am.  So why am I lacking energy? I get dressed, change the settings on my device to daytime … Continue reading “2016-12-03 – Lacking energy.”

I remember to change my device settings to my daytime voltages when I get up this morning, but I still have a little bit of tremor coming through on my left side.  I may self-medicate with a little cannabis later on, if it doesn’t settle down.  I stopped videoing for the Cleveland Cannabis College yesterday … Continue reading “2016-12-02 – More takes.”

I’m videoing for the Cleveland Cannabis College today, so I have loads of preparatory work to do.  While my wife is walking the dog, I bring the camera, tripod and bag of video goodies (radio microphone, connecting cables, remote controls, batteries, etc.) downstairs to the kitchen/studio and then clear the island of plant and fruit … Continue reading “2016-12-01 – The perfectionist in me…”

I returned from holiday to find that I had been paid some money through PayPal by the Cleveland Cannabis College – I am providing them with some video to show to their students.  I’m going to review the video script today, in preparation for shooting the video tomorrow and Friday – the first piece of … Continue reading “2016-11-30 – Preparation for shooting!”

A day of video production lies ahead – I want to finish the editing, then add sub-titles and a watermark, and get it published before my wife gets home from work, so I’d better get a move on! I till have a reasonable amount of left-sided tremor, in spite of my adjustment yesterday.  I would … Continue reading “2016-11-18 – Feels like Winter!”

My wife is out of the house early this morning – she’s gone just after 7am, leaving me in peace and quiet for the day.  Also leaving me to make my own tea this morning – it’s been so long since I had to make it, I’ve almost forgotten the recipe… I change my neurostimulator settings … Continue reading “2016-11-16 – Peace and quiet.”

I intend to video my Charlotte’s Web CBD oil review this morning, whilst my wife is out on an appointment (measuring up for a loose cover), so I clear the island in the kitchen, and set up the camera ready.  I’m just setting up the radio mic, when my wife returns home and announces that … Continue reading “2016-11-15 – Just to be sure…”

I’m going to be product testing today, once my wife has gone to work!  She’s working from home for some of this morning, getting her expenses up to date – they haven’t been done since last December (we have had a bit of a year, what with my operation and subsequent convalescence).  I intend to … Continue reading “2016-11-14 – Well oiled!”

We awaken to another grey and cold day, and the rain is falling steadily.  Depressing!  I’d stay in bed all day if it were left to me, but my wife is up and putting the kettle on, so I reluctantly crawl from beneath the duvet and get myself dressed.  I set my neurostimulator back to … Continue reading “2016-11-12 – Dragged out.”

I slept much better last night – co-codamol helped!  I woke this morning without the dreadful pain in my chest that I was suffering with yesterday, which is a relief.  By the time I’m out of bed and moving around I’m getting the odd twinge, but absolute peanuts compared with yesterday. Tremor remains dangerously close … Continue reading “2016-11-02 – A box of goodies!”

I slept better last night – sleep came quickly, and I didn’t wake until gone 6am.  My Group “B”settings weren’t causing me any issues – no dyskinesia to speak of, and my left leg tremor was minimal.  It wasn’t until I was downstairs, sitting on the sofa having my first cup of tea, that I … Continue reading “2016-10-31 – Interaction.”

My wife is going swimming with our granddaughter this morning, so the dog and I have the house to ourselves. I slept reasonably well again, with reduced voltages and a little cannabis to help things along.   It took me a little while to get off to sleep because my left leg was restless – … Continue reading “2016-10-30 – Getting out of the house.”

I slept right through last night.  I woke up while it was still dark, thinking it was 3am or 4am – a quick glance at the alarm clock revealed it was almost 7.30am!  I turned my neurostimulator down last night, before getting into bed – 1.5v on the left and 1.7v on the right.  I … Continue reading “2016-10-28 – Struggling a bit.”

My wife had a lousy night again, and that meant that I also had a restless and disturbed night.  I’m definitely going to be self medicating (cannabis – and probably alcohol, too) tonight. My wife disappears off to work, and I do the usual dog walk and PopMaster, and then sit myself down at the … Continue reading “2016-10-27 – Publishing again”

I checked out the ATTN: Facebook page this morning to see if they had published the video story about me – they said they intended to do so over the weekend.  Sure enough, I found it a couple of pages down from the top.  It’s an edited version of my original Parkinson’s Disease Tremor Control … Continue reading “016-10-23 – Going viral again!”

I’m awake before my wife’s alarm goes off at 7.30am, but I don’t get out if bed until 8.30am.  I had a reasonable night’s sleep, aside from a little difficulty in actually going to sleep (in spite of some mild self-medication).  Left leg tremor is present, dystonia in my right foot is noticeably worse, as … Continue reading “2016-10-21 – Underachieving!”

I start the day with every intention of knuckling down and finishing my video script, but the day doesn’t start well.  My wife is still battling technology and trying to post online adverts for her soft furnishings business on various Facebook pages and internet newsgroups, so I abandon hope of making progress until she goes … Continue reading “2016-10-20 – Distractions”

Slept well (must have been due to all the wine I drank last night!), and didn’t waken until almost 9am.  Immediately it’s evident that I have a lot more tremor this morning.  I’m also feeling incredibly tired, in spite of my good night’s sleep.  Dyskinesia in my right arm was a little more pronounced last … Continue reading “2016-10-16 – Shaky Sunday”

I’m awake early again – 5.30am, and can’t get back to sleep again.  I lie awake, resting, until almost 8am.  My wife isn’t feeling too bright this morning, so I get up and leave her to sleep on for a while. Everything, symptom-wise, is pretty much as it was yesterday.   Tremor is under control … Continue reading “2016-10-15 – Dinner guests”

I had another good night of uninterrupted sleep, and woke up just before 8am with a fair amount of lower back pain (but not as bad as yesterday!).  Some tremor, some dyskinesia, but overall I can’t complain.  I still haven’t fiddled around with my settings following my device re-programming on Monday, but I might be … Continue reading “2016-10-13 – Published in Polish!”

I slept much better last night – self-medicating with cannabis yesterday evening made sure that I dropped off to sleep quickly when I went to bed.  I woke a couple of times, but went straight back to sleep.  When I woke around 8am, I had quite bad lower back pain, but at least I didn’t … Continue reading “2016-10-12 – Collecting data.”

I didn’t have a great night’s sleep, in spite of being incredibly tired when we got home last night (at about 11.30pm).  It took me ages to get off to sleep, and then I was awake from about 5am, and quite uncomfortable.  Although I didn’t have the severe back pain that I have experienced from … Continue reading “2016-10-11 – Letting them settle.”

What a difference 24 hours can make.  This morning I awake with only mild tremor in my left leg.  I’m on Group “B” settings, same as yesterday morning, but the difference in my tremor is quite remarkable.  I just wish I could figure out whether it’s because my Parkinson’s is having some time off, or … Continue reading “2016-10-08 – More interview questions”

I slept well last night, and wake fairly tremor free for a change! Downstairs, check email (Polish webmaster has emailed to say translations will be here tomorrow), cuppa, Nutriblast, walk the dog, PopMaster! By the time PopMaster is over, tremor has returned and I switch my device over from Group “B” settings to Group “A”. … Continue reading “2016-10-06 – Going back to college”

I received an email overnight from the Polish Medical Marijuana website, confirming that they are happy with my script for the interview video that I am going to be filming today.  The Truth Society haven’t replied yet, but I’m going to go ahead and film it anyway. I have to wait for the washing machine … Continue reading “2016-10-04 – An interview”

My wife and I were woken by an early phone call from one of her sons.  The upshot was that there was a medical emergency, and my wife left the house to go to Hevingham to accompany her son and his girlfriend to the Norfolk & Norwich Hospital.  I email the NHNN to cancel my … Continue reading “2016-10-03 – Cancelled!”

I had terrible restless legs and back pain again when I went to bed last night, even though I had (once again) set the voltages on both sides of my neurostimulator down to 1.5v.  I made the decision to go to Group “B” settings to see if that would help.  I left the voltages at … Continue reading “2016-09-29 – Settings dilemma”

Another difficult start to the night.  I turned my neurostimulator down to 1.5v on both left and right sides before getting into bed, but still felt quite uncomfortable what with back pain and restless legs.  I was just thinking I was going to have to go downstairs and self-medicate with a little cannabis, and then … Continue reading “2016-09-28 – Learning Polish”

I had a bad night, in spite of reducing my device voltages.  I tossed and turned until 1am, and then went back downstairs to self-medicate with a little cannabis.  While downstairs, I checked my email and found a couple of emails from the news agency, requesting additional details about a company that had approached me, … Continue reading “2016-09-27 – A sequel”

Reducing the voltages on my device last night (from 1.95v to 1.5v on the left, and from 2.15v to 1.7v on the right) was a success – I slept through until 7am, only waking once (at 4am) to use the smallest room.  When I did wake, it was without the awful arching of my back … Continue reading “2016-09-26 – A media frenzy.”

Wow!  If I thought yesterday was a busy day in respect of social media and my YouTube video, then today is going to blow my mind!  I slept really well, no thrashing around and waking up multiple times during the night, but I did wake up with severe lower back pain just before 6am and couldn’t … Continue reading “2016-09-25 – I’m a cool father!”

We have to be up a little earlier than usual this morning because my son has reserved an iPhone 7 Plus at the Apple Store in Norwich, and has an appointment to pick his new phone up at 10.15.  I’m quite worried by how excited he is about this.  I blame myself for making him … Continue reading “2016-09-22 – An Apple tart”

I slept better last night. Whether it was because I self medicated (mildly) or because I set my device voltages even lower (1.5v on the left, same as last night, but 1.8v on the right), I don’t know.  I did wake a couple of times (at 3am and 6am) but was able to get straight … Continue reading “2016-09-20 – Impending visitor alert!”

Another lousy night!  I had trouble getting off to sleep again, and then woke countless times with dyskinesia causing me to thrash about, and bad lower back pain (in spite of reducing my device voltages before climbing into bed).  Tremor in my left leg (mainly) was also prevalent, due to the lower level of stimulation. … Continue reading “2016-09-19 – Censored… Really???”

I slept badly last night.  I lay awake until gone 3am, was awake again at 4.30am, and again at 6am.  It’s not due to overstimulation this time, though – I’ve been pretty free from dyskinesia since turning my device down at bedtime last night, and my back pain has eased, so that was evidently caused … Continue reading “2016-09-18 – A very popular post”

I’m awake early again (6am), and can’t get back to sleep (and I did try!), so I get up at 8am.  It’s a miserable, grey, rainy day and it is forecast to rain all day today, so progressing any further with the boxes for my fireplace shelves is out of the question.  I would like … Continue reading “2016-09-16 – Another video production”

I woke up at just before 7am.  I thought about getting out of bed, really I did.  I want to get an early start on the dining room fireplace – I’d really like to finish the job today.  I thought, at 7.28am, that I’d get out of bed at 7.30am.  I woke again at 9am … Continue reading “2016-09-13 – The third day running”

I’m grumpy and miserable today.  Everything irritates me and it’s driving my wife mental.  She says I’m just not myself, and I’m forced to agree.  We think it’s because I’ve increased my stimulation so much, so I immediately reduce the voltage on my neurostimulator by 0.1v on both sides (now 1.95v on the left, 2.15v … Continue reading “2016-09-11 – I’m a miserable git”

Wow!  A lovely late Summer’s day here in Norfolk – NOT!  I draw the curtains back on a wet and grey Southrepps, and when I take the dog for her first walk of the day,  realise how windy it is, too!  A day for staying indoors and vegetating, I think. My wife is going over … Continue reading “2016-09-10 – Wet and windy”

I have received two postal reminders, an email and a text message over the last fortnight – from the garage that performed the MOT test on my car last September, hoping for the repeat business.  For those outside the UK – the MOT (Ministry of Transport) test is a yearly requirement to enable you to … Continue reading “2016-09-09 – Acting on impulse”

I had a little trouble getting off to sleep last night.  My mind was buzzing and not ready to shut down.   It was gone 1am when I eventually managed to drop off, and then I was awake again (and I mean WIDE awake) just after 6am.  Perhaps something to do with my current level … Continue reading “2016-09-07 – No regrets”

I slept well, and don’t recall being awake at all during the night.  When I wake, I have the familiar tremor in my left leg but, other than that, all is well.  When I get downstairs and have my cup of tea, the rot sets in.  I’m stressed because I’m not achieving anything with regards … Continue reading “2016-09-05 – Not having a good day”

It’s getting to be a habit, this waking up for no apparent reason in the middle of the night!  I’ve been fully expecting to be woken by dyskinesia brought about by my increased voltages in Group “A” settings, but it hasn’t really materialised.  Tremor is still a pain in the arse, so I’ll be cranking … Continue reading “2016-09-03 – Cranking it up again”

I’m awake early again (4.35am) for no apparent reason.  I don’t have any pressing need to visit the smallest room, I don’t appear to have any dyskinesia, and my wife is sound asleep so it wasn’t her that woke me.  I manage to get back to sleep for a couple more hours, and wake just … Continue reading “2016-09-02 – How come it’s worse?”

When I awaken (at 4.30am) I’m conscious of the tremor in my left leg.  Dyskinesia isn’t the reason I’m awake early for the first time this week, in fact it really doesn’t show itself until I’m getting out of bad 3 hours later.  It’s definitely not as bad as it was yesterday, but the tremor … Continue reading “2016-09-01 – Casting caution to the wind”

My wife is going back to work this morning, so I am going to take the opportunity to shoot a couple of pieces to camera while I have the house to myself.  I’m meeting with a friend of a friend this afternoon over at The Vernon Arms to discuss Parkinson’s Disease and Deep Brain Stimulation. … Continue reading “2016-08-31 – What a berk!”

Well, this is the 3rd day in a row that I have been experiencing increased tremor on my right hand side.  I think it’s because I have been overdoing it (which I did again, yesterday) but I can’t be sure.  I’ll try not to do anything too taxing today and see if it settles down … Continue reading “2016-08-25 – More juice required?”

I had another day of increased tremor, poor balance, weak speech, and aching muscles.  I feel really fatigued even though I had another good night of sleep, and I think it must be because I’ve overdone it (although I really and truly haven’t been doing that much).  Dystonia in my right foot is playing up … Continue reading “2016-08-24 – Think I’ve overdone it!”

My wife wants to sort out the mess in the conservatory today.  The conservatory is full of all of my junk, materials left over/not yet used for the renovation of our cottage (which would have been completed long ago, if it  hadn’t been for my Parkinson’s Disease) and a wide selection of hand tools and … Continue reading “2016-08-21 – Organising stuff!”

I’m still troubled by tremor in my left leg (mainly), but other than that, I’m feeling pretty good.  Tremor has always been my main symptom and I hope, above all else, that I’ll eventually defeat it with my DBS.  Motivation and energy were things that I had never expected to be influenced by DBS, yet … Continue reading “2016-08-20 – Positive state of mind”

Today I’ve been mainly video editing…  It’s been a very long time since I did any of this stuff – maybe 9 or 10 years.  Back then my camera was state of the art (passed by the BBC for broadcast quality video) but that was before the advent of High Definition video.  It’s still a … Continue reading “2016-08-19 – YouTube Video”

I slept well, my wife didn’t.  She decides to take the day off work today and attend to things at home.  I decide that I’m going to play around with YouTube and video editing today. I’m feeling very stressed for some reason, and it’s having a big effect on my tremor and dystonia.  The last … Continue reading “2016-08-17 – More stress = more tremor”

I had a disturbed night’s sleep and woke with plenty of tremor in my left leg.  If it doesn’t settle down, then I’m going to be giving my settings another tweak. I’m still feeling in a better state of mind, and I’m not suffering any side effects (well, hardly any) from the increases in voltage … Continue reading “2016-08-14 – Another tweak”

My wife has a lull in her business, so we are going to take advantage of it and spend a couple of days back on the river.  We get breakfast out of the way, load up her car and head off to our mooring at Wayford Bridge. My tremor has gone up a couple of … Continue reading “2016-08-09 – Back on the river.”

I’m full of tremor today.  Even as I sit typing my blog, the laptop is bobbing around on my lap because of the tremor in my legs.  My left leg is the worst, but tremor control throughout my body leaves a lot to be desired.  I’m tempted to adjust my neurostimulator, but I don’t.  My … Continue reading “2016-08-08 – Lights! Camera! Inaction?”

I have to find a new mooring for my boat by the 1st of August, so time is running out.  We get up reasonably early (for a Sunday), and I’m on the case – scanning the waterways of the Norfolk Broads on Google Maps (satellite view) to see where all of the tucked away marinas … Continue reading “2016-07-24 – Out and about”

Another fabulous warm Summer day.  It’s a little bit hazy today, but it’s 26 degrees Celcius in the lounge this morning. I booked some holiday flights today for my wife and I, and her youngest son and his girlfriend.  I like to go away when the evenings are dark and the weather is cold – I … Continue reading “2016-07-20 – Hot and sticky”

Another bright morning, sunshine and blue skies.  That’s the only similarity to yesterday, though.  I had a good night’s sleep, so that isn’t to blame.  I feel unable to do anything this morning, except the morning dog walk.  The morning dog walk has to be done.  It’s expected of me, and she wouldn’t understand if … Continue reading “2016-07-15 – What a difference a day makes.”

We are off to Brundall this morning to deliver and install some boat seat cushions that my wife has been making.  We have to go to my wife’s place of work in Hevingham to pick the cushions up first, so things are a little rushed in the house this morning – cups of tea (and … Continue reading “2016-07-11 – Helping out”

We get our deserved lie-in this morning and don’t rise until gone 10am.  Still feeling pretty shattered, though.  I can’t do late nights like I used to be able to! My wife makes the tea and coffee and then disappears off to Hevingham to collect our dog, leaving me to catch up with my blog … Continue reading “2016-07-03 – An easy day.”