2016-10-28 – Struggling a bit.

I slept right through last night.  I woke up while it was still dark, thinking it was 3am or 4am – a quick glance at the alarm clock revealed it was almost 7.30am!  I turned my neurostimulator down last night, before getting into bed – 1.5v on the left and 1.7v on the right.  I also self-medicated with cannabis.  Something obviously worked because I got off to sleep without trouble, slept right through without being woken by dyskinesia, and feel much better this morning (apart from the ever present tremor in my left leg).  I restore my settings to their previous values (1.95v on the left, 2.3v on the right) and then I’m ready to face the day.

I’m not sure what to do today.  Now that the latest video has been published, there’s a bit of a void.  There are plenty of jobs waiting to be done around the house, but nothing that doesn’t require major disruption, and I can do without major disruption at the moment.  I end up bringing the wood in for the fire and building the fire for lighting this evening, and then sweeping up (the majority of) the fallen leaves in the back garden.  I just leave them in a big heap for the time being, and hope the wind doesn’t get up and blow them all over the place again before I’ve had a chance to bag them up and put them in the bin!  I’m thinking of another couple of DBS videos that I’d like to do, so perhaps I can get on with scripting those next week – all of this video work isn’t getting the house finished, but it is giving me some sense of purpose.  I feel as if I’m struggling a little with my motivation, but I am still managing to get stuff done, and that’s the main thing.

My left leg tremor is persisting, and I also have (from time to time) some tremor in my right arm.  Dyskinesia has got quite a bit worse since I set my voltages back up this morning.  I’m almost (but not quite) throwing my drinks around as I raise them to my mouth – not quite bad enough to make me change my settings again.

I intend reducing my voltages again at bedtime, and also self-medicating with some cannabis – let’s hope it’s as effective tonight as it was last night!

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