Another difficult start to the night. I turned my neurostimulator down to 1.5v on both left and right sides before getting into bed, but still felt quite uncomfortable what with back pain and restless legs. I was just thinking I was going to have to go downstairs and self-medicate with a little cannabis, and then I must have fallen asleep! I woke at 7am, and lay there awake until almost 8am.
My wife makes me a nice cup of tea and a Nutriblast, before dashing out on an appointment on the way to work. I have a good full body tremor this morning, and crank those voltages up again, as high as I dare (2.1v on the left, 2.15v on the right). A couple of hours later and there’s still a whole lot of shaking going on, so I’m thinking about going back to the Group “B” settings this afternoon. My back feels fairly rigid too, and lower back pain is definitely an issue. When I take the dog for a walk, I don’t feel quite so wooden when I’m walking, so I guess my balance must be a little better today. Dystonia doesn’t even cross my mind – that’s remarkable! Dyskinesia – more embarrassing than uncomfortable, but an unwelcome guest nonetheless. Mood, motivation, energy – all pretty damn good!
I was contacted yesterday by a Polish medical marijuana website, asking if I’d be prepared to put Polish sub-titles on my Parkinson’s Disease Tremor Control video – naturally, I said yes. So this afternoon I took the translation of my English sub-titles and entered them on my YouTube channel so that Polish people can understand what the video is all about. It was actually good fun, and I could (mostly) relate the Polish words to the English ones. I emailed them when I was done, to get them to approve my changes, and they were so pleased – made me feel quite good!
My latest video has had almost 50,000 views by this evening – pretty amazing, considering it’s just me, talking to camera about the previous video!
I updated my Facebook status to show the number of views I had received on the Parkinson’s Disease Tremor Control (over 30 million), and received so many supportive messages from ex-colleagues and friends, new and old, that I felt quite emotional. I still haven’t changed my device settings, so I’ll probably wait until tomorrow now…