2019-06-21 – The efficacy of cannabis.

Last night I turned off my DBS and proved (again) the efficacy of cannabis as a medicine.  My voice was so weak when I arrived home (from visiting the NHNN in London) late last night, that my wife suggested that I turn it off to see if my voice was any better without it.   The … Continue reading “2019-06-21 – The efficacy of cannabis.”

2018-12-21 – Reaching for the cannabis.

I’m feeling jumpy today, kind of like I have restless legs syndrome, but throughout my entire body.  It’s most unpleasant and uncomfortable, and has me reaching for the cannabis very early in the day (I generally don’t take any cannabis before the evening).   The cannabis doesn’t actually make the jumpy feeling go away, but it … Continue reading “2018-12-21 – Reaching for the cannabis.”

2018-07-27 – Focused on cannabis.

My weekly vlog is focused on cannabis (again), and the attitudes of those people who have been misinformed about its medicinal properties, so I manage to write a script for it straight off the top of my head (no research required). The UK government announced yesterday that they will reschedule cannabis-based medicines within weeks.  That’s … Continue reading “2018-07-27 – Focused on cannabis.”

2019-07-23 – A disturbed night.

I had a disturbed night last night, because of the current heatwave (I think) rather than as a result of turning my neurostimulator off at bedtime.  I woke up several times during the night, but was able to get back to sleep relatively easily, so eating some cannabis medicated chocolate brownie before going to bed … Continue reading “2019-07-23 – A disturbed night.”

2019-07-22 – Today’s tasks…

Today’s tasks (aside from the usual dog walking) are to order two new batteries for our boat, order some digital scales (for greater accuracy in filling capsules with thiamine, etc.) and make up capsules filled with thiamine for the week ahead.  I negotiate a discount with a battery seller on eBay, and place an order … Continue reading “2019-07-22 – Today’s tasks…”

2019-07-15 – Medicated chocolate brownies.

The thiamine powder and empty capsules that I ordered last week have now been delivered, so I  fill a week’s worth of capsules (which is about all I feel capable of doing today).  I’m paying the price for my weekend of car cleaning – everything is an effort, and it feels like every muscle in … Continue reading “2019-07-15 – Medicated chocolate brownies.”

2019-07-09 – Clutching at straws.

It’s physiotherapy day, so I drive to the cottage hospital in North Walsham and cycle for just over 45 minutes on the motorised exercise bike.  My other forms of exercise today are the usual dog walks (two of) and making up some more capsules of thiamine – I am nearing the end of my supply … Continue reading “2019-07-09 – Clutching at straws.”

019-07-02 – At the cottage hospital.

I have a physiotherapy appointment at the cottage hospital in North Walsham this morning.  I manage just over 45 minutes on the motorised exercise bike, which I’m reasonably satisfied with.  While I’m in North Walsham I call in to Lidl and purchase the ingredients for some chocolate brownies that I intend making later in the … Continue reading “019-07-02 – At the cottage hospital.”

2019-06-24 – Tremor!

My voice is deteriorating again so I decide to change my neurostimulator settings again, and select group “B” settings – adjusting the voltages to the minimum allowed (1.40 volts on the left, 2.15 volts on the right).  Significant tremor on both sides (but mostly in my left leg) instantly emerges.  I put up with it … Continue reading “2019-06-24 – Tremor!”

2019-06-22 – John West Great East Swim.

Today I drive to support some good friends of ours who are taking part in the John West Great East Swim at Alton Water near Ipswich.  My wife stays in Norfolk because our next grandchild is on its way and she wants to be on hand for her eldest son and his partner if they … Continue reading “2019-06-22 – John West Great East Swim.”

2019-06-04 – My Norfolk neurologist.

I have an appointment with my Norfolk neurologist at the Norfolk and Norwich hospital at 12pm today so, after drinking my two mugs of tea and nutriblast, walking the dog and helping our neighbour to install a new broadband router, I jump into my car and drive to Norwich.  The traffic is heavy and there … Continue reading “2019-06-04 – My Norfolk neurologist.”

2019-05-16 – A Samsung Galaxy tablet.

My birthday present from my wife (a Samsung Galaxy tablet to replace my ancient iPad) arrives this morning, so today is largely spent downloading apps, configuring it to receive email from my accounts and generally setting it up so that it feels familiar.  Having said that, I’m still using my iPad to do certain stuff … Continue reading “2019-05-16 – A Samsung Galaxy tablet.”

2019-03-07 – An interview.

I have received a Facebook message from a journalist working for a UK magazine called Vapouround CBD.  She’s researching the effects of CBD and THC on the symptoms of Parkinson’s Disease, and she came across my YouTube videos so wanted to interview me about my experiences.  I send her a message agreeing to an interview … Continue reading “2019-03-07 – An interview.”

2019-02-07 – Minimal motivation.

Another day of minimal motivation, and I really struggle to get up off my backside to do anything (and there’s plenty that I could be doing).  The dog gets me out of the house this morning for a quick stumble around the field by the village hall, but it’s trying to rain and I’m glad … Continue reading “2019-02-07 – Minimal motivation.”

2018-11-20 – Cold, wet and windy.

I’m still under the weather, still not feeling up to doing anything at all.  The fact that it’s cold, wet and windy outside isn’t helping at all.  I dash out with the dog mid-morning when it stops raining for a few minutes, but get caught in a downpour of hail, which does nothing to improve … Continue reading “2018-11-20 – Cold, wet and windy.”

2018-11-17 – Looking after our youngest granddaughter.

We are in Hevingham for the day, at the house of my wife’s youngest son and his wife, looking after our youngest granddaughter.  She is full of cold, so I resign myself to catching it – I don’t often catch colds, but then again I’m not often cooped up in such close proximity to a … Continue reading “2018-11-17 – Looking after our youngest granddaughter.”

2018-11-08 – A (very) short list.

I’m still pretty knackered today (or perhaps I just don’t feel very motivated – whatever!) so I have another day of doing very little.  I make a (very) short list of things that I need to achieve – go to the allotment and harvest some spinach (which I do when taking the dog out for … Continue reading “2018-11-08 – A (very) short list.”

2018-10-12 – Writing a script.

I spend the morning writing a script for a vlog that I’m preparing for publication whilst my wife and I are away on holiday.   I film myself (with a large number of retakes, mainly due to dissatisfaction with my voice), and then transfer the raw footage to my MacBook and get cracking with editing it. … Continue reading “2018-10-12 – Writing a script.”

2019-10-01 – An appointment with my neurologist.

I have an appointment with my neurologist this morning so, armed with evidence of the efficacy of medicinal cannabis (for me) I drive to the Norfolk and Norwich Hospital to ask him two things: (1) to prescribe me exenatide, a type 2 diabetes drug that has been shown to arrest the progression of Parkinson’s Disease … Continue reading “2019-10-01 – An appointment with my neurologist.”

2018-09-25 – A couple of easy jobs.

I’m not feeling very energetic or motivated, but I really don’t want to just sit on the sofa all day, so I decide to do a couple of easy jobs around the house.  After drinking my tea and nutriblast, walking the dog and listening to PopMaster, I clean the bathroom sink, then have a (successful) … Continue reading “2018-09-25 – A couple of easy jobs.”

2018-09-22 – A little anxious.

I’m feeling a little anxious about the JustGiving campaign that I launched yesterday – what if it’s a total failure?  Our friends are not the kind of people who sit out with a begging bowl, but I do know that they are not exactly flush with money and that they are currently running up a … Continue reading “2018-09-22 – A little anxious.”

2018-09-14 – My Member of Parliament.

I sent a Facebook message to my Member of Parliament (Norman Lamb) last week, reminding him who I am (we both appeared on the Victoria Derbyshire show about medicinal cannabis), informing him that I intend to ask my neurologist to apply to the Home Office’s “Expert Panel” for medicinal cannabis on prescription, and asking him … Continue reading “2018-09-14 – My Member of Parliament.”

2018-09-07 – An afternoon appointment.

I fit my Friday routine around an afternoon appointment with my doctor today, so I am keen to get as far as I possibly can with my weekly vlog before I have to leave the house to drive over to Aldborough Surgery.  I research my chosen subject (infrared light therapy for Parkinson’s and Alzheimer’s) and … Continue reading “2018-09-07 – An afternoon appointment.”

2018-09-06 – Researching online fundraising websites.

Another day of lazing around.   My muscles have recovered from last weekend and I no longer wince when I move, but I just don’t feel inclined to do anything.  I spend the day researching online fundraising websites, decide on JustGiving, and setup an account. I want to create a campaign to raise money for a … Continue reading “2018-09-06 – Researching online fundraising websites.”

2018-08-20 – Researching the process.

I spend most of the day researching the process for applying to the government’s expert panel to acquire cannabis-based medication on prescription.  I already did a certain amount of research a couple of weeks ago, when I did my weekly vlog on the subject, but I wanted to go through the application form that my … Continue reading “2018-08-20 – Researching the process.”

2018-08-19 – Chilling out.

We decide to spend a little time chilling out on our boat today – not actually going downriver (it’s fairly breezy, and that doesn’t make for stress-free boating – unless you have a sailing boat, which we haven’t) but sitting aboard, drinking tea/coffee and listening to music.  So, we get in the car and drive … Continue reading “2018-08-19 – Chilling out.”

2018-08-18 – Spending some time with a friend.

Today we are spending some time with a friend of ours who has had bowel cancer and, following surgery and chemotherapy, is now left with Crohn’s Disease, peripheral neuropathy, depression, anxiety and obsessive compulsive disorder (OCD).  Her consultant recently told her that cancer markers in her blood were slightly elevated, and predicted that her cancer … Continue reading “2018-08-18 – Spending some time with a friend.”

2018-08-14 – Weekly physiotherapy.

Tea, nutriblast, dog walk and PopMaster, and then it’s time to head off to North Walsham cottage hospital for my weekly physiotherapy session on the motorised exercise cycle.  It’s a little cooler this week, so I manage to cycle for a full 60 minutes.  After I finish, I pop into Lidl for some snacking items … Continue reading “2018-08-14 – Weekly physiotherapy.”

2018-08-06 – Aching all over.

I’m tired, stiff and aching all over today, but particularly in my left hip and leg.  I don’t recall having over-exerted myself over the weekend, so I guess it’s just Parkinson’s Disease letting me know that it’s still there. I phone my doctor’s surgery to make an appointment to discuss applying for medicinal cannabis on … Continue reading “2018-08-06 – Aching all over.”

2018-08-03 – Ludicrous hoops.

My wife suggests that I vlog about the process that you need to go through in order to obtain access to cannabis related medicines on prescription, so my day is spent researching and scripting the ludicrous hoops through which sick people are expected to jump in order to access medicine that is both effective and … Continue reading “2018-08-03 – Ludicrous hoops.”

2018-08-02 – Some paperwork.

I’m meeting my younger brother this morning to sign some paperwork (and have those signatures witnessed) relating to our mother’s estate – the chap who owns the boatyard next to where our boat is moored at Wayford Bridge, is a Justice of the Peace, so he has said that he’ll witness our signatures.  After getting … Continue reading “2018-08-02 – Some paperwork.”

2018-07-28 – Delicious chocolate brownies.

I’m making cannabis edibles (for a friend with multiple health issues) this morning – delicious chocolate brownies made with the cannabutter (cannabis infused butter) that I prepared a few days ago.  I try one out before I give them to my friend (to assess how strongly they are medicated – it’s a bit hit and … Continue reading “2018-07-28 – Delicious chocolate brownies.”

2018-07-20 – Cleaning the house around me.

My wife has another day off work today, and spends the morning cleaning the house around me, while I attempt to research and script my weekly vlog.  Luckily not a great deal of research is required because I am vlogging about medicinal cannabis, and how we (the general public) have been brainwashed by our government … Continue reading “2018-07-20 – Cleaning the house around me.”

2018-07-17 – Physiotherapy day.

Tuesday is physiotherapy day, so I’m off to North Walsham cottage hospital (after drinking my tea and walking the dog) for an hour of cycling on the motorised exercise bike.  I have my brain thoroughly picked by the team of physiotherapists regarding medical applications for cannabis – it’s unbelievable (to me) that they really know … Continue reading “2018-07-17 – Physiotherapy day.”

2018-07-13 – Friday the 13th.

It’s Friday the 13th (and I’m not superstitious).  I spend all morning and some of the afternoon researching sleep disturbance in Parkinson’s Disease, which is the chosen subject for my weekly vlog.  I learn quite a lot about this symptom, its causes and available treatments.  I don’t suffer too badly with disturbed sleep (unlike my … Continue reading “2018-07-13 – Friday the 13th.”

2018-07-10 – Below par.

I’m still feeling a little below par, and don’t really want to go to North Walsham cottage hospital for my physiotherapy appointment this morning.  I force myself, though, because I think it’s important to improve muscle tone in my legs.  I spend an hour on the motorised exercise bike, and feel pretty knackered afterwards.  I … Continue reading “2018-07-10 – Below par.”

2018-07-07 – Not feeling like doing very much.

I’m whacked, and I wake up with a sore throat this morning, so it looks like I’m coming down with a cold – terrific!  I’m not feeling like doing very much, in any case.  I post links to my latest vlog on Facebook, Twitter and Instagram, and then my wife and I drive to Longwater … Continue reading “2018-07-07 – Not feeling like doing very much.”

2018-07-06 – Patients in Parliament.

I’m up at 7.45am, drink 2 mugs of tea and a nutriblast, grab my essentials (car keys, DBS controller, camera, phone, speech and tickets) and I’m out of the house just a shade after 8.30am. I’m soon on the train from Gunton to Norwich, on my way to Westminster in London, where I have been … Continue reading “2018-07-06 – Patients in Parliament.”

2018-07-05 – Scripting, filming and editing.

I am scripting, filming and editing my weekly vlog today, because tomorrow I will be travelling to London to speak in Parliament on behalf of Parkinson’s patients, in favour of the legalisation of cannabis for medicinal purposes. I select a subject, research it online and write myself a script.  I have a difficult time filming … Continue reading “2018-07-05 – Scripting, filming and editing.”

2018-07-02 – Still exhausted.

I don’t feel quite as bad as I thought I was going to feel today – I’m still exhausted, though, and I don’t think that the current heatwave that we’re experiencing is helping (not that I’m complaining – give me “warm and dry” over “cold and wet” any day of the week).  My voice is … Continue reading “2018-07-02 – Still exhausted.”

2018-06-30 – Taking it easy (again).

I’m still feeling fatigued, so I’m taking it easy (again) today.  My wife is working all weekend (again) so I decide to deal with some administrative tasks that I can accomplish online from the comfort of the sofa.  I pay the river licence for our boat and settle the invoice for our Calor gas delivery before … Continue reading “2018-06-30 – Taking it easy (again).”

2018-06-28 – The second (and final) day of the Royal Norfolk Show.

We are up at 6am for the second (and final) day of the Royal Norfolk Show.  We drop the dog off at my wife’s youngest son’s house in Hevingham, and we are at the Norfolk Showground by 7.30am. It’s another scorcher of a day, and the craft tent is buzzing with people.  We had a … Continue reading “2018-06-28 – The second (and final) day of the Royal Norfolk Show.”

2018-06-25 – Obliged to cook some breakfast.

My daughter is staying with us for a couple of days, so I feel obliged to cook some breakfast – I usually make do with my nutriblast, but this morning I prepare fried eggs on toast for us both.  I take the dog for her first walk of the day, and then sort out my … Continue reading “2018-06-25 – Obliged to cook some breakfast.”

2018-06-20 – Awake at 4.20am.

I’m awake at 4.20am and can’t get back to sleep, so I lie awake thinking about what I want to say (given the chance) on the Victoria Derbyshire show this morning, and wondering whether or not I’m expected to speak at Doctor Frank’s meeting in Parliament this afternoon.  I get up when my alarm goes … Continue reading “2018-06-20 – Awake at 4.20am.”

2018-06-19 – A bit more of a workout.

Another session on the motorised exercise bike at North Walsham cottage hospital this morning, and this time it’s a bit more of a workout – I’m feeling as though I’ve actually expended some energy this time. I have a busy day with the media.  It’s all kicking off with the campaign to legalise cannabis since … Continue reading “2018-06-19 – A bit more of a workout.”

2018-06-14 – I’m champing at the bit.

I’m champing at the bit to know if my neighbours have spoken to their son-in-law (a doctor) to see if he can shed any light on my doctor’s change of heart over prescribing me exenatide.  So, after taking the dog for her morning walk, I prepare an invoice for them (for a blind that my … Continue reading “2018-06-14 – I’m champing at the bit.”

2018-06-09 – Busy Saturday.

We’ve had a busy Saturday today.   I construct the fireguard and vacuum downstairs while my wife drives to Hevingham first thing this morning to collect our eldest granddaughter and bring her over to Southrepps for a couple of hours (to give her parents a break).   My wife takes our granddaughter down to the children’s playground … Continue reading “2018-06-09 – Busy Saturday.”

2018-05-08 – Not in much of a better place.

I’m really not in much of a better place (pain and mood-wise) than I was yesterday.  I still have a lot of sciatic pain in my hips and legs, and it’s getting me down.  My sore throat and bronchial cough are not responding to the medicinal dose of cherry schnapps that I administered just before … Continue reading “2018-05-08 – Not in much of a better place.”

2018-04-22 – Paying the price.

I’m paying the price for yesterday – I’m aching all over and don’t have a great deal of energy.  While my wife carries on with the gardening, I sit and post links to my weekly vlog on social media and then check out what’s happening in the world on Twitter (President Trump’s Twitter Feed is … Continue reading “2018-04-22 – Paying the price.”

2018-04-20 – The speech therapist.

I have an appointment with the speech therapist at 10am this morning, so I’m out of bed, tea drunk, dog walked and in my car driving to Norwich by 8.50am.  No real progress was made with my eating problem (I keep biting the inside of my mouth when eating) but I am to continue with … Continue reading “2018-04-20 – The speech therapist.”

2018-04-10 – Minimal achievement.

Another day of minimal achievement.  I’m still struggling to motivate myself, so it’s a relief to get a knock on the door from my new neighbour who is looking for some help and advice on wiring in his new cooker hob in his kitchen and plumbing in his new sink.  I go next door, armed … Continue reading “2018-04-10 – Minimal achievement.”

2018-03-30 – Today is spent editing.

I should have completed work on my weekly vlog yesterday, but didn’t…  Today is spent editing – it’s much more complicated than my usual vlogs which are normally very straightforward, and it takes me almost the whole day to finish. My wife leaves me to it and disappears off to Hevingham to do a little … Continue reading “2018-03-30 – Today is spent editing.”

2018-03-19 – A few online tasks.

I have a few online tasks lined up for today, which is just as well, really – although the sun is shining brightly this morning, it’s still damned cold out there!  I promised the physiotherapist that I would email her some links to information about forced exercise, so I spend a little time digging around … Continue reading “2018-03-19 – A few online tasks.”

2018-03-18 – A disturbed night.

We had a disturbed night last night – our youngest granddaughter (who stayed with us overnight) had a bit of an upset tummy last night, and is also full of cold. I have to say that my wife’s sleep was more disturbed than mine, because she dealt with the fallout! My wife’s daughter-in-law came over … Continue reading “2018-03-18 – A disturbed night.”

2018-03-16 – Another day of writing scripts.

Another day of writing scripts, this time it’s for my weekly vlog.  I have decided to talk about forced exercise for Parkinson’s, since that is a subject that is in the front of my mind at the moment.   I manage to find lots of information about it online, but most of it is in quite … Continue reading “2018-03-16 – Another day of writing scripts.”

2018-03-13 – A little below par.

I’m still feeling a little below par, and still not really doing very much.  I need to return the blood pressure monitor to my doctor’s surgery today – my readings over the last 7 days have all been consistently abnormally high, but not officially classified as high, so it’ll be interesting to hear what my … Continue reading “2018-03-13 – A little below par.”

2018-03-11 – Mothering Sunday.

Mothering Sunday, and it’s the first time in my 56 years that I don’t have my mum.  It feels strange not to be giving her a card, some flowers, chocolates…   After lunch we drive over to Worstead (via Lidl in North Walsham for some flowers, general groceries and a couple of beers) to wish my wife’s … Continue reading “2018-03-11 – Mothering Sunday.”

2018-03-10 – Lounging around at home.

My wife is off to Hevingham this morning – she has to return our eldest granddaughter to her parents, and then she is going to go to work.  I’m going to be lounging around at home, as usual.  I remove the fireguard from around the woodburner and dismantle the stairgate at the bottom of the … Continue reading “2018-03-10 – Lounging around at home.”

2018-03-07 – Filling out some forms.

It’s another grey and wet day in Southrepps, which is the perfect excuse for staying indoors and doing very little – not that I need an excuse…  I do have some admin tasks to get out of the way, so I make a start on filling out some forms connected with my mother’s estate (that … Continue reading “2018-03-07 – Filling out some forms.”

2018-02-23 – Patients At Parliament

It’s the Patients At Parliament protest outside the House of Commons today, in support of Paul Flynn‘s Elizabeth Brice bill for legal access to medicinal cannabis, so that is what this week’s vlog is all about.  I would really like to be there with all of the other protesters, but my wife can’t afford to … Continue reading “2018-02-23 – Patients At Parliament”

2018-02-19 – The Parkinson’s nurse.

I have an appointment with the Parkinson’s nurse at 9am this morning, so we are up, tea/coffee drunk and out of the house by 8.40am.  We arrive at North Walsham Hospital bang on time, and have a reasonably productive meeting with the nurse.  My wife and I convince her that my referral to speech and … Continue reading “2018-02-19 – The Parkinson’s nurse.”

2018-01-19 – Well ahead with the script…

I expected to be well ahead with the script for my weekly vlog today, having done some research and scripting yesterday, but I’m not ready to start filming until gone 1pm.  I change my neurostimulator settings over to group “A” because these settings don’t affect my voice quite so much, but I still have quite … Continue reading “2018-01-19 – Well ahead with the script…”