2016-09-18 – A very popular post

I slept badly last night.  I lay awake until gone 3am, was awake again at 4.30am, and again at 6am.  It’s not due to overstimulation this time, though – I’ve been pretty free from dyskinesia since turning my device down at bedtime last night, and my back pain has eased, so that was evidently caused by my DBS, too.

I go downstairs and sit with a cup of tea my wife made for me before disappearing off to Hevingham to go swimming with our granddaughter.  Tremor is not too bad this morning, so I don’t turn the voltages back up  on my neurostimulator just yet.

I check to see how my video is doing on YouTube – it’s had over 150 views, and I’m happy with that.  I then receive a message from another YouTube user telling me that my video had been shared by another FaceBook page that campaigns for legalisation of cannabis.  I search the page out and find my video, and I’m shocked to see that it has been viewed almost 5,000 times!

By the time I’ve taken the dog for her morning walk, my tremor is on the increase and dystonia in my right foot is proving very uncomfortable, so I turn my device up on the right hand side to 2.2v.  Instant relief.  I leave the left hand side alone for the time being.  It doesn’t last for long – the tremor in my left leg increases to a level that I’m not prepared to tolerate, so I increase the voltage on my left side back up to 1.95v.  I’ll turn it down again at bedtime.

My video is getting quite popular by now, and by the time evening rolls around it has been viewed over 17,000 times – quite remarkable!  My tremor is much more manageable by now, but my dyskinesia is on the increase again so I’m looking forward to turning my device down again.  Balance is ok, walking is wooden, motivation and mood are fine, energy is on the low side because of a late night last night, and a poor night’s sleep.

We opt for another early (ish) night.

One thought on “2016-09-18 – A very popular post”

  1. Hello Ian! I am sooooo happy that your video is being seen by so many! It is a very powerful visual and says volumns about the positive effects of cannabis.
    After David’s DBS surgery when we were looking for medical marijuana (we were in California at the time, where it was legal medicinally only), we found that the people in the medical marijuana community were so helpful. Truly caring folks who just wanted David to feel better.
    Now that we are in Oregon, it is also legal for recreational use. We even tried to grown our own plant this year, but I wasn’t having much luck so our gardener took it home where I hear it is recovering nicely. Our two grown sons got a big kick out of that!
    So, so happy you are getting your message out there. Keep blogging!
    Sheila and David in Oregon

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