I checked out the ATTN: Facebook page this morning to see if they had published the video story about me – they said they intended to do so over the weekend. Sure enough, I found it a couple of pages down from the top. It’s an edited version of my original Parkinson’s Disease Tremor Control video, with some additional images, and a few seconds of footage taken from the Skype call which we had on Thursday evening. It hasn’t been published for 24 hours yet, and already it has had almost half a million views and been shared more than 10,000 times – looks like I’m going viral again! I post links to my Facebook pages, Instagram and Twitter, and then spend some time reading the comments and replying where necessary.
Tremor is more pronounced this morning, both in my left leg and my right arm. Everything else (dystonia, dyskinesia, balance, walking, mood, motivation, energy…) seems pretty much the same. I decide to switch programs back to my Group “A” settings and see what happens. I feel a good old tingle on my left side as the other program kicks in, but other than that, there doesn’t appear to be any immediate change. Half an hour later, I notice that tremor has all but disappeared from both my right arm and my left leg, which is brilliant! I will just have to wait and see if it comes back once my brain has become accustomed to the change in stimulation. I’ll leave the voltages alone (left side 1.95v, right side 2.3v) and adjust them later, if necessary.
We go out to dinner at my wife’s youngest son’s house in Hevingham, and get to see our granddaughter at the same time, so that’s a bonus. My tremor remains fairly well controlled, so I don’t make any adjustments to my device. Let’s hope my sleeping is good, too. I mildly self-medicate with cannabis when we get back home, just to ensure I can get off to sleep without any trouble.
A question about your video. How long does the control over the tremor last? Can this help Dyskinesia? My husband did not have ANY dyskinesia until in the middle of his first surgery when they tested the implant and that started it. Thank you!
Hi. Tremor control lasts for about 3 hours. I don’t believe it helps surgery induced dyskinesia, although it does make it easier to withstand! My surgery induced dyskinesia can be moderated by careful programming of my neurostimulator — has your device programmer tried to avoid it?