I had a bad night, in spite of reducing my device voltages. I tossed and turned until 1am, and then went back downstairs to self-medicate with a little cannabis. While downstairs, I checked my email and found a couple of emails from the news agency, requesting additional details about a company that had approached me, wanting to use my video. I replied with the relevant information, and then went back upstairs to bed. This time I slept.
This morning I am going to work on another video for my YouTube channel. It’s a follow up video to my Parkinson’s Disease Tremor Control video, answering some of the common questions and comments that have been raised. My wife and I had made a list of points to cover last night, so I settle down to create a script for the video immediately after walking the dog, and Popmaster. By 12pm I have finished, and email it over to my wife so that she can check and approve!
My tremor is running wild today, and my left leg is very affected. I decide to increase stimulation on my device, so now I have 2.1v on the left side, and 2.15v on the right. I feel the tingle of electricity, and it calms things a little, but it’s still not great. Also, I think my Group “A” settings are responsible for the terrible back pain that I’ve been experiencing over the last couple of days, and it makes me almost cry out in pain when I move in a certain way. I’m going to go through my blog at the weekend and make some notes – I have a re-programming appointment at the NHNN on Monday afternoon, and I want to make sure I can give them some accurate data about my experiences with their previous efforts! As far as the rest of my symptoms go, my mood, energy and motivation are pretty good on these settings, and dystonia is much improved. The negatives are balance (but I’m still not actually falling), speech (a little weak, slurred and indistinct, but I’m still making myself understood) and dyskinesia (certainly worse than on Group “B” settings, but nowhere near as bad as it has previously been). This is all fine, if tremor is controlled, because I feel that the negatives are a price worth paying. If, however, tremor doesn’t improve this afternoon, I may well revert to Group “B” to see if I can get more relief there.
My script has been approved, so I get on with the filming, editing and sub-titling. By the time my wife returns from work, I have just put the finishing touches to it, and get her to review it before I upload it to YouTube. She’s very impressed (and easily impressed) and even liked my Rhett Butler impersonation (“Frankly, my dear, I don’t give a damn!”).
By the time I have uploaded it and made it available for public viewing, it’s time for bed. I check it 30 minutes later, before turning out the light, and it’s already had more than 100 views!