2016-09-25 – I’m a cool father!

Wow!  If I thought yesterday was a busy day in respect of social media and my YouTube video, then today is going to blow my mind!  I slept really well, no thrashing around and waking up multiple times during the night, but I did wake up with severe lower back pain just before 6am and couldn’t get back to sleep again.  I had better lower my voltage before going to sleep tonight – hopefully that will deal with the back pain.  I give up trying to sleep just after 7.30am and get out of bed (without disturbing my wife), get dressed and go downstairs to give the dog her breakfast.

There’s a Facebook message from my youngest stepson telling me that my video has been posted on another Facebook page, and has had almost 1 million views!  I thought that my video had pretty much peaked as far as YouTube and Facebook were concerned, and was really waiting to see if the news agency that I was contracted to, would be able to sell it to the news channels.  Not so!  My phone has been pinging all day with YouTube and Twitter notifications about views and comments on my video, and by the time evening rolls around, it has had in excess of 6 million views across just 2 Facebook pages plus my YouTube channel. Officially viral!  I’m even sad enough to calculate that during the course of today it has been viewed 100 times per second – mind boggling…

I have been responding to comments and questions most of the day, and also referring the websites that are displaying my video to the licensing department of the news agency.  It seems like the world and his dog just copy and display content on the internet without any thought of ownership or copyright.  I really don’t understand how it all works, which is why I signed the contract with the news agency – they can deal with all of that.  Even so, I suspect that I am going to be having a fairly busy week!

Symptom check!  Dystonia – okay.  Dyskinesia – verging on the unmanageable at times;  I think I’ll have to turn down my stimulation tomorrow if it doesn’t abate.  Balance is definitely worse than yesterday, and I’m continually catching myself;  my walking isn’t too good either.  Speech is worse also – I find I’m struggling to get my words out, and then I sound a little slurred or indistinct.  Tremor – still present, especially when stressed, but so much better than yesterday.  Mood – really pretty damn good!  Energy – ditto!  Motivation – much the same;  not too bad, but quite variable.

I Facetime my daughter this evening, and she is most impressed that she has seen me on the Unilad website today.  I had been a little concerned about how my son and daughter would react to my social media fame, but I needn’t have worried.  My son has been texting me all afternoon advising me on what to put in my next video, and how I should promote it.  My daughter tells me that it is really cool to have a parent whose video has gone viral.  My kids are pretty cool, also…

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