I had terrible restless legs and back pain again when I went to bed last night, even though I had (once again) set the voltages on both sides of my neurostimulator down to 1.5v. I made the decision to go to Group “B” settings to see if that would help. I left the voltages at the settings I had previously used when I last had Group “B” settings activated (1.75v on the left, 2.2v on the right). After a few minutes I no longer had the irresistible urge to move my legs, and I could feel the muscles in my back relaxing. I dropped off to sleep pretty quickly after that, and slept through until 6am. I woke with dyskinesia in my neck and my right arm – most uncomfortable! After almost an hour of trying to get back to sleep, I gave up and got up.
I check my emails (nothing of any interest), Instagram and Twitter (plenty of notifications about my videos) and Facebook, where I find a long message from the owner of the Facebook page that posted my Parkinson’s Disease Tremor Control video and got the majority of the 30+ million views that it has now had. I’m very touched by the content of the message and the sincerity of it, and I requested (and got) permission to share it on my blog.
I still haven’t heard from the news agency that is (supposedly) handling the licensing of my video, so I send them a snotty email and wait for a response although, from their record to date, I could be waiting for quite some time.
My dyskinesia has eased off slightly, and I am going to resist fiddling with my settings for the time being. My balance is really crap today, and I very nearly come a cropper on multiple occasions. Dystonia remains well under control. Speech remains indistinct and strained. Mood, motivation, energy – all good. My back pain is still kicking around, but it’s not as bad as it was yesterday.
I spend the afternoon adding Polish subtitles to my latest video for the Polish medical cannabis website, and they send me a set of interview questions to film myself answering, so that’ll keep me busy for a day or so next week.
It’s getting on for bedtime, and still no reply from the news agency – no real surprise there!