I’m feeling very tired today, and take things very easy, which may not seem to be much different to the norm (but it is!). I make myself a “to do” list with about half a dozen easily achievable tasks – by the end of the day, I’ve managed to cross off 4 of them, so I’m pleased with that. I received an email from Norman Lamb (my Member of Parliament) this morning, with copy of the local healthcare trust’s response to his recent letter about exenatide – basically reiterating their refusal to fund the drug for Parkinson’s Disease because of “insufficient evidence of benefit”, and laying the ultimate responsibility for doing so at the door of the CCG (who labelled the drug as “experimental”, which I dispute). I had expected this response, but it’s still a blow to me, and I’m feeling very down by the time my wife arrives home from work – especially when I’m struggling to speak to her coherently (and failing).
I intended to call Norman’s office today to speak to him about the CCG’s response, but I decide that I need to respond (in writing, and in detail) to this, and the healthcare trust’s reply, and I’m simply not feeling up to it right now.