Today we are leaving the boat. My wife has work to do, and I also have things that I should be getting on with. Regretfully, we unload the boat and reload the car for our trip back home.
I’m definitely feeling more positive – whether that’s because of our little holiday on the boat or because of my device setting adjustments, I’m really not sure! I do know that it isn’t because my symptoms are all under control, because tremor, balance and speech are all an issue at some point during the day. My dyskinesia and dystonia are both still present, but they are very much in the background and do not bother me unduly. Tremor can seem to be very much under control, and then my left leg will start, or my right hand will be almost out of control for a few moments – I concentrate for a few minutes, making movements to bring the tremor to heel again, and then suddenly it’s all under control again. As the day wears on, and I become more tired, my voice gets weaker and it’s more of an effort to communicate. Balance is unpredictable. I’ll seem to be in full control, and then it catches me out without any warning whatsoever. My reflexes are still pretty good, though, and I haven’t ever actually fallen to the ground.