My symptoms are running riot today. Nothing in comparison to how I was before my DBS, but running riot by post-operation standards. Tremor on both sides, dystonia in my right foot, dyskinesia in my right arm, aching muscles all over and a weak, husky voice that keeps breaking up. It’s not a good day.
I need to finish scripting my vlog this morning, film it, edit it and publish it this afternoon. My tremor makes the scripting difficult, but eventually it’s ready to be loaded into the teleprompter app on my iPad. I set up the camera and tripod in the lounge and then I’m ready to shoot!
I’m almost embarrassed to say how long it took me to film the 4 minutes of video. It should have taken (by recent standards) about 30 or 40 minutes – let’s just say it took over 2 hours, shall we? My voice is constantly letting me down, running out of steam mid-way through sentences, strangling my words – it’s so frustrating!
Amidst the frustration of filming, I am also receiving emails from Vice.com about the filming of the documentary about cannabis and Parkinson’s. They are having problems getting the use of a studio, so the schedule flickers between Monday 27th March and Tuesday 28th March so many times that I lose count. By the time I’ve loaded the footage onto my MacBook and started editing, the filming of the documentary has been re-scheduled for Saturday 1st April!
My wife arrives home from work just as I am starting to edit my vlog. We have something quick and easy for dinner, and then my wife goes to North Walsham to get some groceries (her parents and brother are coming to dinner tomorrow evening) while I finish editing my vlog, load it to my YouTube channel and publish it to the world.
I self-medicate with a little cannabis. My tremor seems a little more under control now, thank goodness. Dystonia is also more bearable. Muscles still ache and my voice is still pants, though.