I’m up just before 7.30am, and make the morning tea and coffee before my wife arrives in the kitchen to prepare the Nutriblasts. She comes up with a revision for the script of my “DBS on/DBS off” video, and I set about revising the script (since it is a good revision!) for filming today.
My wife departs for work, I walk the dog, finish my 2nd cup of tea, drink my Nutriblast and listen to PopMaster. The dog settles down on the sofa for a snooze, and I set up the camera and tripod, load the script into the teleprompter app on my iPad and set about rehearsing prior to actually filming myself and remaking my video.
I film myself (not too many re-takes!), load the video onto my MacBook, and edit it – only taking half an hour out to give the dog her afternoon walk, and grab a few logs from the back garden so that we can have a fire this evening. I am adding the final touches (sub-titles and watermark) as my wife returns home from work. This time my work gets full approval, so I upload the video to my YouTube channel and publish it.
I’m feeling exhausted from having my DBS switched off today – I had forgotten how tiring it is to have constant tremor and dystonia. This evening the tremor in my left side is persisting, and I have a lot of dystonia in my right foot – possibly as a consequence of having my DBS switched off this afternoon? Who knows! I just hope that things revert to relative normality tomorrow.
I light the fire while my wife prepares dinner, and then we settle down on the sofa and watch a little something on Netflix.