My wife had a lousy night again, and that meant that I also had a restless and disturbed night. I’m definitely going to be self medicating (cannabis – and probably alcohol, too) tonight.
My wife disappears off to work, and I do the usual dog walk and PopMaster, and then sit myself down at the computer to finish editing my video. I finish the sub-titles and then double check that the words on the screen match the words that I’m saying (they don’t, and I make the necessary amendments) and that the words on the sub-titles are all spelt correctly (they’re not, and I make the necessary amendments).
My wife’s grandma has had a comfortable night, and they are going to get her up and walking today – It’ll be such a relief if she makes a good recovery from her fall; I know that my wife is really stressed about it at the moment.
My tremor seems a little stronger today (left side and right side) but it’s more than likely down to stress rather than any failing of my DBS to keep things in check. I’m certainly not about to make any changes right now. Dystonia is also a little more noticeable, but I’m coping. Dyskinesia is mostly not too much of a problem – I just tend to windmill about with my right arm when I’m getting up from the sofa, which is probably amusing to watch, but isn’t really very funny from my perspective…
Before I know it, it’s 4pm, and time to take the dog out again before it starts to get dark. When I return, I publish my video “Deep Brain Stimulation (DBS) Side Effects” to YouTube, put links to it on my Instagram, Twitter, and Facebook accounts, and then post messages in the various Parkinson’s Disease/DBS groups on Facebook and Yahoo Groups. It’s amazing how quickly the video starts being viewed by people, and the comments start to come thick and fast (positive comments, by and large).
We eat dinner, chill with a beer or two, and then I self-medicate and get myself into bed – hoping for a better night tonight!