I start the day with every intention of knuckling down and finishing my video script, but the day doesn’t start well. My wife is still battling technology and trying to post online adverts for her soft furnishings business on various Facebook pages and internet newsgroups, so I abandon hope of making progress until she goes over to her workshop in Hevingham to take some product photographs for the website – but that’s okay, there’s still plenty of time.
I still have a fair amount of tremor on both sides of my body (but mainly on my left) and I still can’t decide what to do settings-wise – do I increase the voltages on my Group “A” settings (and risk dyskinesia increasing) or do I change over to Group “B” settings and see how they affect things? I’d be more inclined to increase the voltage on Group “A” if it weren’t for the fact that dyskinesia is a little bit stronger today. I take the dog for her morning walk, and note that my balance and walking are still fairly pants. So, when I get back home I decide that I shall change my device settings to Group “B” if things haven’t improved by this afternoon.
I’ve received an email from another American news agency, wanting to use my “Parkinson’s Disease Tremor Control” video, and also wanting to chat to me on Skype. I email them back and refer them to the news agency that is handling the licensing of my video. They sound very keen, and I suspect I’ll be hearing more from them later on today.
I change my neurostimulator settings from Group “A” to Group “B”. I get the usual tingle and “Wow” feeling as the different program is loaded, but no great feeling of being tremor free – in fact, if anything, it’s worse! I check the voltages, and I’m getting 1.75v on the left, and 1.8v on the right, so much lower than the last time I used Group “B” (10th October, when I last went to the NHNN for a tune-up). I’ll give them a few hours to settle in before making any adjustments.
I’m still not walking very well when I take the dog for a walk this afternoon – no improvement whatsoever.
The American agency that messaged me earlier have been back in contact – they are going to use my video, and also want to record a video interview on Skype. When they call me late this evening, I get quite stressed, and tremor comes flooding back big time. I hope I didn’t appear to be a complete gimp. After the call, I self-medicate with a little cannabis – perhaps I should have done that during the interview!