I’m a man with a mission this morning. I want to get my video finished and published. I need to finish editing the video clips, and then caption the whole video before uploading it to YouTube. We are attending our granddaughters birthday party this afternoon, so there is a deadline! I had a fairly bad nights sleep last night – I was wide awake at 5am, and then very restless until I got up at around 8.30am. I have been thrashing around in my sleep , my wife says, and I wake up in some discomfort. I also have still got a lot of back pain that I think is related to levels of stimulation. I think I’ll have to try lowering the voltages on my neurostimulator at bedtime and see what effect that has…
I complete my video, upload it to YouTube, and then post links to it from Facebook, Instagram and Twitter. I’m amazed at the almost instant reaction to it. By the time we are at our granddaughters party, I have had almost 100 views – amazing!
My tremor remains fairly stable – not perfect, but not as bad as it has been. Dyskinesia is definitely a problem at night, but tolerable during the day. Dystonia is bearable. My speech isn’t wonderful, but generally it’s okay – it’s only when I get tired that it gets weak and starts to break up. Balance is about the same – I’m still managing to catch myself before I hit the deck. My mood, motivation and energy are all pretty good.
I’ve had enough of partying and socialising, so my wife takes me home and puts me to bed . (Okay, I lied. She takes me home and I put myself to bed). Before I turn out the light, I adjust the voltages on my device, turning my left side down from 1.75v to 1.5v and my right side from 2.2v to 1.95v. Hopefully I’ll have a better night tonight.