2016-09-03 – Cranking it up again

It’s getting to be a habit, this waking up for no apparent reason in the middle of the night!  I’ve been fully expecting to be woken by dyskinesia brought about by my increased voltages in Group “A” settings, but it hasn’t really materialised.  Tremor is still a pain in the arse, so I’ll be cranking it up again today at some stage, I expect.   Anyway, as I mentioned, I am awake again just before 5am, but luckily fall straight back to sleep until 7.45am.  I seem to be getting plenty of sleep, even when we have a late night like last night, but I feel washed out at the moment and haven’t got much energy.  Motivation-wise, I’m okay.

My wife takes the dog for a good long walk, and I am on a mission to finish off another video for my YouTube channel today.  The editing is almost done – just a little work required at the beginning and end – and then it’s just a case of adding a voiceover and captioning it.  Tremor is causing me problems again, though, so I increase the voltage again on both sides for the third day in a row.  1.85v on the left, 2.05v on the right.  No noticeable decrease in tremor or dystonia.  No noticeable increase in dyskinesia.  What I have noticed is an increase in back pain of the middle/lower variety – not sure if it’s related to my settings, but I wouldn’t be surprised.

I finish the video with difficulty, and then my wife and I go to dinner at her youngest son’s house in Hevingham.  I self-medicate with cannabis on the way, and then eat entirely t0o much food.  When I’m in the kitchen getting myself a drink, I get a wild twitch of dyskinesia in my right leg.   Just the once.  Just in the right leg.  I do hope it goes away by tomorrow…