Had a better night’s sleep last night – most likely because I self-medicated just before going to bed last night. We got up earlyish again because we are babysitting for our granddaughter again today – in fact my wife was on her way to Hevingham to pick her up before I was even out of bed.
I get myself dressed and go downstairs to make inroads on the pot of tea that my wonderful wife has so thoughtfully made before departing. I am reminded (by my tremor) that I really must make an appointment with Joseph at the NHNN for a tune-up, so I try calling the secretary’s number. Answerphone. Again.
My wife returns with a happy and smiling grandchild, and we immediately go to take the dog for a walk together. When we return, I try calling the hospital again. The phone is answered! Amazing! Not so amazing is that the secretary tells me that she is unable to book an appointment for me, and that she has passed my message on to Joseph who will call me to arrange a date and time. So… a day of sitting in and waiting for the phone to ring.
I’m getting fed up of tremor. I change my device settings over to Group ‘B’ so that I can become less fed up of tremor and more fed up of dyskinesia. Nothing seems to be working very well at the moment. Tremor presides over everything regardless of settings, dyskinesia, dystonia, poor balance and weak voice are all present in varying amounts, but I’m coping with them. The post arrives, and with it is my Fitbit, which I bought on eBay on Sunday. I spend the next couple of hours installing software on my MacBook, iPad and iPhone, and learning how to use the damn thing! I bought it on the recommendation of a friend, and thought it might motivate me to do a little more in the way of exercise. I also bought one for my wife because I know she wants one. Absolutely bloody typical that hers hasn’t arrived yet (and I bought hers a week ago).
My mother and father-in-law arrive to see their great-granddaughter, and this passes the afternoon away quite nicely.
Granddaughter returned, afternoon turning into evening, still no call from the hospital. Dog walked. Dinner eaten. Hobgoblin Served. Time for House Of Cards.