I wake at 3.30am, and then sleep until just before 6am. I switch on my device to control my morning tremors, and then get up and get dressed.
Downstairs. I check my emails and find one from Joseph that I had somehow missed yesterday afternoon. Unfortunately he is going to be away next week, but he could make me an appointment with someone else. It seems he was so overloaded with work that he didn’t have time to read my email thoroughly, and he didn’t seem to understand that the cost of travelling to London for an appointment is a major consideration for me. I need to be assured that the dyskinesia is something that can be adjusted out before I commit to spending almost £100 in travel costs.
I make tea and coffee, and take a mug of coffee up to my wife who is still in bed, having not had such a good night’s sleep as I did. I tell her about the email, and she agrees with me that I really need to speak with someone on the DBS team before committing to an appointment.
My tremor is getting a little stronger in my right arm and my motivation is very low again, although everything else seems pretty well controlled right now.
My wife appears downstairs and takes the dog for her morning constitutional – bang goes my reason to get out of the house this morning. She leaves for work, and I sit on the sofa and do very little for most of the day.
I do manage to call the NHNN again and get hold of one of the secretaries. None of the specialist nurses are available and she recommends calling back tomorrow morning at 9.30. I will! I put a reminder on my phone.
The time for the dog’s afternoon walk is fast approaching and the heavens have opened again. It rains for 3 hours solid, and the dog doesn’t pester me as she usually does. She doesn’t like going out in the rain.
I load the dishwasher and put it on. My wife arrives home and cooks us some dinner, and then we sit and watch some telly before getting ourselves a relatively early night. I really must try to do a little more tomorrow!