I didn’t make as much progress with my weekly vlog yesterday as I would have liked, so I’m feeling under pressure today. I need to have it completed before I go to Cromer this afternoon for a meeting with my Member of Parliament, Norman Lamb. My voice is a little better than it was last Friday, but I’m still struggling with it – 66 takes were required last week, 57 this week (which is almost double what I would consider to be “normal”).
I manage to finish the filming and editing before I have to leave the house to drive to Cromer, leaving my MacBook to create the video file while I’m out.
My meeting with Norman is very encouraging. He understands the issues I raise instantly, branding the fact that I’m being denied access to exenatide (despite the support of my doctor and two consultant neurologists) as “scandalous” (which it is!). He dictates three letters while I am there (to the head of the health trust, and two other senior figures in the healthcare world – I can’t remember exactly who they are) labelling these missives as “extremely urgent” and requesting a reply within 14 days to prevent adverse publicity. He asks me if I want him to add my request for medicinal cannabis to these letters, but we agree that the request for exenatide is most pressing and we really don’t want to muddy the waters. I leave the meeting feeling very positive.
When I get home, my wife is back from work, and is busy cooking our evening meal. I upload my vlog to my YouTube channel, publish it and call it a day!