Search results for: cannabis

Another good night of sleep.  Another lie-in.  10am again 🙂  I’d have got up a couple  of hours earlier – I was lying wide awake with a fairly vigorous tremor going on throughout my body, and dystonia trying to turn my right foot into a claw – but I switched my neurostimulator on, and then … Continue reading “2016-06-26 – Getting there slowly”

I’m determined to sort out a few technical issues on my blog today.  I haven’t been able to load any photos to the blog for weeks now, and it’s starting to niggle me.  I have spent hours searching online forums for information and made pointless change after pointless change to system files.  Finally I try … Continue reading “2016-06-20 – A little off-balance”

Father’s Day.  I have a lengthy text from my son (who’s not a great one for sending cards), which says a lot of nice things – he’s a sensitive soul, my son.  There’s a card waiting for me downstairs from my daughter.  She knows me well, and it’s a funny card, no flowery verses for … Continue reading “2016-06-19 – A family day”

Slept reasonably well until about 5am and then just dozed on and off for the next few hours.  At 8am I decided to switch my device on, and then I got up and got dressed just before 9am. My wife and I live in a little terraced cottage in Southrepps, Norfolk.  I bought it as … Continue reading “2016-06-18 – Planning to get stuff done!”

Slept well again!  I’m helping my wife hang some curtains at a customer’s house this morning, so we get up at a reasonable time (7.45am) and get the day started with a cup of tea (me) and coffee (my wife).  My wife takes the dog for a quick walk while I drink my tea and … Continue reading “2016-06-15 – A bit more energy”

Cannabis is a wondrous thing.  I was asleep last night before I even knew it, and slept right though until 5.30am.  I snoozed until 7am and then turned the power on and got up.  My wife has to be in Hevingham at 8am to pick up our granddaughter – we are babysitting for the day … Continue reading “2016-06-14 – Non-prescription medication!”

I wake at 5.30am.  I’m not ready to get up yet, but I’m wide awake and no chance of going back to sleep with the amount of tremor I’ve got going on.  Dystonia in my right foot is also really bothering me.  After lying there awake for half an hour I decide to switch the … Continue reading “2016-06-13 – Flaming June!”

It was a better night last night.  I was awake at 1.15am, 4.45am and 6am, but I went straight back to sleep again, so not too much of a concern.  My wife’s alarm goes off at 7.15am, and we survive 2 hits of the snooze button before getting out of bed.  Power on.  Get dressed. … Continue reading “2016-06-10 – Fighting apathy”

Another good night, although I did wake at least once, I went back to sleep before I even looked at the clock.  My wife had a bad night’s sleep so it could have been her moving around that made me wake.  I’m fully awake at 6.45am but don’t switch on and get up until 7.30am. … Continue reading “2016-06-08 – Just can’t be bothered”

Amazed to sleep right the way through until 6.55am!  Had a really good night’s sleep, and feel rested and refreshed.  Out of bed.  Switch on.  Get dressed. Downstairs.  Drink my cuppa and Nutriblast that my wonderful wife has made for me, and go through my list of tasks for the day.  It’s more of a wish … Continue reading “2016-06-07 – Expert advice required”

I had another good night.  Only woke up once (4.30am) and then slept until about 8am.  I lie there awake, and feel my tremor starting up – slowly at first, then stronger and stronger until I can feel that I am actually shaking the bed.  I do a mental symptom check.   Tremor (hell, yeah!), … Continue reading “2016-06-04 – Okay, I surrender”

Beer not only helped me get off to sleep last night, it kept me asleep until 4am!  I slept again, and woke just before 7am.  My wife has an early start this morning, so by 7.20am she is out of bed and dressed.   I have a slightly more leisurely start to the day, assessing … Continue reading “2016-06-03 – Trying to keep positive”

Feeling very grumpy this morning.  I had a really broken night’s sleep, waking at 12.30am, 1.15am, 2.30am, 3.15am, 4am, 5.45am, and finally 7am.  I can feel the dyskinesia in my neck already, so it would seem that it isn’t caused by the neurostimulator, although it may be exacerbated by it!  I switch the power on … Continue reading “2016-06-02 – Dyskinesia is a four letter word”

A slightly more disturbed night.  I awoke at 2.30am, 3.15am, 5am and 6.30am.  It was okay though, because I wasn’t lying there awake – I went straight back to sleep. I certainly seem to have been waking up more frequently during the night since the operation.  I had thought it was due to the neurostimulator … Continue reading “2016-06-01 – Twitchy McTwitchface”

Had another reasonable night up until 5am, when I awoke in much discomfort with my back.  Tossed and turned and dozed until I crawled out of my pit and switched my neurostimulator on just after 8.30am.  Co-codamol required! Painkillers kick in fairly quickly, and my bad back doesn’t bother me for the rest of the … Continue reading “2016-05-31 – A quiet day”

Dreadful night.  Awake and uncomfortable for most of the night.  I’ve always found the bed on the boat extremely comfortable, if a little short for someone over 6 feet tall, but it has now given me a fair amount of lower back pain. I get up just after 7am. On with the power.  The tremor … Continue reading “2016-05-29 – Taking stock”

Only awake briefly at 4.15am and then sleep until just before 6am.  I’m feeling good this morning and am dressed and downstairs before I’ve turned my device on.  Instant tremor control on the right, almost instant dyskinesia, too.  Dystonia comes trailing along behind a couple of hours later. Our guests depart around lunchtime following a … Continue reading “2016-05-26 – It’s a waiting game”

I woke up many times in the night, but this time I think it was probably due to my wife hacking and coughing.  She seems to have picked up a cold from somewhere (probably from our granddaughter).  Anyhow, I had a night free from tossing and turning and feel rested and ready to face another … Continue reading “2016-05-23 – The cavalry is here!”

I only woke once during the night; at 4.30am when my wife told me I had been thrashing around a little.  Decided to leave my device switched on, and see how it went.  Slept again until around 6am and was aware of being on the verge of thrashing around.  My tremor was quite pronounced throughout … Continue reading “2016-05-22 – Trying to work it out..”

Didn’t wake until 4.30am, and then just before 6am, so definitely sleeping better without DBS being switched on.  No thrashing around either, so I conclude that that was due to dyskinesia caused by the neurostimulator.  I have a moderate tremor throughout my body, and dystonia is returning to my right foot, but it isn’t too bad – … Continue reading “2016-05-21 – Careful consideration?”

Another good night’s sleep. I’m awake just after 3am, and around 4.30am, and just before 6am, but feel rested, not in any major discomfort and not thrashing about and moaning, so that is definitely progress.  I lay in bed until just after 9am, dozing from time to time and trying not to disturb my wife … Continue reading “2016-05-20 – Shaking but not stirred”

I slept well.  Although I woke at 3am, 4.30am and 6.15am I wasn’t in as much discomfort as previously and certainly don’t recall any thrashing about.  My wife confirmed that I hadn’t been shouting or thrashing around in my sleep, so that seems to be a side effect of DBS – perhaps… My neck is still … Continue reading “2016-05-19 – Going back in time”

I woke just after 5.30am in extreme discomfort with my head and neck.  I got out out of bed and dressed almost immediately, not wanting to disturb my wife. When she awoke and came downstairs, she told me I had been thrashing about in the night and making a lot of noise.  Generally, she felt, … Continue reading “2016-05-18 – Side effects”

Woke at 2.30am and again at 3.30am, and then it was 5.45am and I’m really awake and in quite a lot of discomfort with my neck.  Not really what I would call being in pain, but definitely too uncomfortable to go back to sleep.  I lie there, though, until just before 7am and then get … Continue reading “2016-05-16 – Another tweak”