Another good night, although I did wake at least once, I went back to sleep before I even looked at the clock. My wife had a bad night’s sleep so it could have been her moving around that made me wake. I’m fully awake at 6.45am but don’t switch on and get up until 7.30am.
Downstairs. I make a brew and some fresh coffee for my wife. Another little benchmark – being able to carry my tea to the lounge and put it down on the table without spilling it. I don’t spill the tea, so that’s okay. Dyskinesia almost makes me knock it off the table, but that’s a whole different issue. Everything appears to be stable at the moment. Tremor is about the same as yesterday and the day before. So is dystonia. So is dyskinesia. Moodwise, my motivation is down the toilet at the moment. I assume that, just as my tremor is less controlled on my current (no pun intended) low voltage settings, so my mood is less elevated for the same reason. I’m finding it very difficult to achieve the simplest things.
I have achieved the composition of an email to Joseph at the NHNN, though. I email it to my wife first, wanting her opinion on whether I have covered all of the relevant points and that what I have written is clear. I get the thumbs down because she feels that I have understated the severity of the side effects. She is more than likely correct, so I amend the email, and then send it to Joseph. Crossed it off my list!!!
The dog is pestering me for a walk – she knows the routine better than me, so I put my boots on and take her to chase a ball on the field by the village hall.
This evening the tremor is getting to me a little, so self-medicate (cannabis and alcohol) mildly, and this helps a lot!
I turn off my device when I get into bed, and notice that the tremors are getting a little more persistent now, and return much more quickly when stimulation is turned off. I’m not yet struggling to get to sleep because of them, but it is certainly more troublesome.