Feeling very grumpy this morning. I had a really broken night’s sleep, waking at 12.30am, 1.15am, 2.30am, 3.15am, 4am, 5.45am, and finally 7am. I can feel the dyskinesia in my neck already, so it would seem that it isn’t caused by the neurostimulator, although it may be exacerbated by it! I switch the power on before my feet have even touched the floor, enjoying the “Wow!” feeling that comes with it.
I know it’s going to be a difficult day before I have even finished getting dressed – my neck is still very stiff, the kind of stiffness you get from sleeping in a cold draught, and the dyskinesia in my neck is making my head move quite violently. Every time it does, expletives abound – plenty of effing and blinding here this morning, I can tell you. The dyskinesia in my right arm is still there as well, but is nowhere near as painful (more annoying than painful). I went to sleep last night and woke up this morning with very uncomfortable dystonia in my right foot, but this has reduced greatly with the switching on of my device (if I were at all religious, I’d say thank God for small mercies – but I’m not, so just thanks for small mercies).
Our dog drags me out for morning walkies, and that gets me moving a little better. At least it isn’t raining this morning, although it is very breezy here. The last two days have been horrendous – torrential rain and high winds. My mate from Brighton, his partner and their daughter are travelling to nearby Overstrand today, and are camping there for a couple of days – I do hope the weather is kind to them. They are taking my wife and I out for dinner in The Vernon Arms tonight – provided I can get a table!
Table booked.
Our friends arrive just after I have self-medicated (cannabis) to deal with significant tremor in my right arm, and remark on how calm I appear to be. Dyskinesia is still there in my right arm and my neck, but it is not as painful as it was this morning, and is bothering me less by this time.
Our dog gets plenty of attention from their daughter, who is desperate for a dog of her own. She tells her mum and dad that she’s now decided she wants a labrador!
My wife arrives home from work, and we head off to The Vernon Arms. Good company, good food and good beer make the next few hours disappear in a flash. Our friends depart for their camp site, and my wife and I head for bed. I add another 0.1v (up to 1.8v now) to my left side before switching my device off for the night. The beer ensures that my tremor doesn’t keep me awake.