2016-06-03 – Trying to keep positive

Beer not only helped me get off to sleep last night, it kept me asleep until 4am!  I slept again, and woke just before 7am.  My wife has an early start this morning, so by 7.20am she is out of bed and dressed.   I have a slightly more leisurely start to the day, assessing my dyskinesia prior to turning my device on.  Yep! Still there in my neck and my arm!

Out of bed.  Switch on.  Get dressed.  Downstairs.  Brew.  Twitch.  Curse.

Our friends arrive just after 10.30am, and we take the dog for a quick walk before heading out to Sheringham and Holt for a wander around.

Dyskinesia seems about the same as yesterday, I don’t think it has got any worse.  Very uncomfortable.  Very self-conscious.

We walk around Sheringham town centre, stop for a drink and a bite to eat (cheesy chips for me!) in The Crown, then drive to Holt.  We don’t stop in Holt, which I am glad about because the earlier walk has really wiped me out.

Back home I try to sort a few things out before my wife gets back from work.  We have invited our friends over for dinner – green Thai curry followed by Banoffee Pie.  I run the vacuum cleaner over the rug in the lounge, and then start preparing the ingredients for the curry.  I’m a little safer with a sharp knife than I was prior to my operation, but the dyskinesia makes for interesting times.  Manage to cut the chicken breasts up without stabbing myself, chuck them into the pan with the coconut milk and curry paste, and leave the rest of it to my wife (and she makes the Banoffee Pie, too!).  Tremor is prevalent in my right arm, and dystonia ever present in my right foot – both less severe than prior to my operation.  I self-medicate (cannabis) before our friends are due to arrive.  Tremor and dystonia are significantly calmed.

Our friends arrive, eat curry and Banoffee, drink beer and wine, chat and listen to music, and return to their camp site just after 10pm.

Tremor is virtually non-existent in my left arm and leg, but I increase the voltage to the maximum setting on the left side (1.9v) before switching off and getting into bed – it’s important to find out if it was the left hand side that was causing the impulsive behaviour before.  If impulsive behaviour doesn’t re-emerge then I can turn it back down a few clicks and perhaps explore the higher voltage settings on the right hand side (provided dyskinesia doesn’t get any worse).

Leave a Reply

Your e-mail address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.