2016-06-26 – Getting there slowly

Another good night of sleep.  Another lie-in.  10am again 🙂  I’d have got up a couple  of hours earlier – I was lying wide awake with a fairly vigorous tremor going on throughout my body, and dystonia trying to turn my right foot into a claw – but I switched my neurostimulator on, and then twitched (my dyskinesia returns in a flash) and dozed for a while.  My tremor is definitely getting more difficult to ignore when I turn my device off, and it is obvious that my Parkinson’s Disease is progressing well behind the scenes.  It’s only a matter of time before I will need to leave my device on at night so that I am able to get to sleep.  Having said that, I didn’t self-medicate with cannabis last night, and that may be why I struggled to get to sleep.  I had had a couple of beers, but alcohol is not so effective.

I don’t appear to have done any more damage to my right elbow when I fell again in the bath last night.  It’s still sore, mind you, from when I fell a couple of nights previously.

My wife takes the dog for her first walk of the day, and then she’s keen to continue sorting the bedroom out.  I’m not keen to do much at all.  I mean, I’d like to do loads of stuff…  I just can’t at the moment.  I’m really hoping that a little re-programming on Tuesday will sort things out a bit on several fronts!  I eventually mix up some mortar for making good around the slate hearth in the fireplace in our bedroom, and then I made a (reasonably) good job of making good.

masterbedroom 1

I also did a little weeding in the back garden while my wife was working away in our bedroom, cleaning and dusting and hanging the newly made curtains  (which she made!).  It’s really starting to look like a home now, rather than just the house where we live.

masterbedroom 3

We go shopping in North Walsham for some picture frames (we need half a dozen of various sizes – we buy one) and a battery for a clock that we found in one of the boxes we brought down from the loft.  I’m feeling very stiff and inflexible at the moment, and my walking isn’t particularly good either – getting in and out of my wife’s car is a bit of a struggle.

When we get home, the dog wants her afternoon walk, but it’s just started to rain.  I wait for it to abate a little, and then take her for a quick stroll in the drizzle before we have dinner.

We sit, this evening, with boxes of old photos; trying to sort them all out, but really just reminiscing and laughing at how we (and our families) used to look.  Nothing gets sorted, but we now know we need a load of photo albums!

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