2017-07-09 – A bit of a scrub.

I’m awake around 6.45am, but I’m in no hurry to get up.  At 8.30am I get dressed and join the dog in the main cabin, leaving my wife to catch up on some much needed sleep.  I always sleep well on the boat, but I wake up in discomfort.  I think that we have such a comfortable mattress at home that I really notice it when I sleep elsewhere.  And then there’s the fact that the bed on the boat is only 6 feet long, and I’m a couple of inches longer than that!

My wife wakes soon after, and we decide (after breakfast) to give the outside of the boat a bit of a scrub (it desperately needs it!).  After about 20 minutes I’m knackered, but my wife is made of sterner stuff and continues for quite some time after I give up.

I’m much more shaky today, tremor is breaking through on both sides, and I’m thinking that I may possibly be approaching the time for another visit to the National Hospital for Neurology and Neurosurgery in London to have my DBS adjusted.  My voice is still weak and husky – I’d be interested to see if that can be improved by re-programming my neurostimulator.  I’m feeling quite motivated, but a severe lack of energy is impacting on my ability to get things done.

At 2pm we decide to head back up the river to Wayford Bridge, moor the boat up and head over to Stalham (about 3 miles by road) to visit my mum.  She’s struggling with her speech (again) today but, aside from that, is having a much better day than when we last saw her.

Homeward bound, we unload the car and my wife clears it all away while I sit and watch.

Leave a Reply

Your e-mail address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.