When I attended the NHNN to have my device re-programmed last Friday, I explained that my problems were left sided tremor, and a lack of motivation. Whilst the DBS programmer was adjusting out my tremor, I experienced a “lifting” sensation. It was like having a sack of potatoes taken from my head and shoulders, and was such a strong sensation that it was almost a physical “lifting”. I thought that that could have signalled an end to my lack of motivation but, if today is any indication, then I fear that is not the case. Tremor is a little better today, since I increased the left hand side voltage on my device, so things appear to be settling down. My voice is getting very soft and weak again, though, and my balance and walking have deteriorated as well. It takes me so long to recover from a long day like last Friday, though, so it’s currently not possible to say whether the changes in my symptoms are down to the device re-programming or just because I’m exhausted.
I get out of bed with good intentions of working my way through a list of tasks that I have written down, but it’s now approaching the end of the day and I have only crossed one item off (and that was just an email that I needed to send). I have done the “usual” tasks (2 dog walks, split some logs, filled the log basket and vacuumed downstairs) so I have done something, just nowhere near what I wanted to achieve.
I really need to get the bathroom finished, so I was supposed to have put that job out to tender on the internet, and still haven’t managed to do it. You’d think it was simple enough. A simple task. An easy win! I don’t understand why it’s so difficult, either. But it is.
My wife calls to say she’s on her way home, so I stick a couple of ready meals in the oven – that was an easy win!
I’m still feeling knackered (and I slept pretty well last night) so I’m planning on an early bath and early to bed.