I had another solid night’s sleep, thanks to cannabis, and woke just before my alarm went off at 7am. Tremor is giving my left leg a good shake, so I quickly change my neurostimulator to Group “A” settings. There is an immediate reduction in tremor, so that’s a relief. Hopefully it will remain under control.
My wife leaves for work and I start looking at some holiday video that one of my neighbours has asked me to edit for him. I’m interrupted by the phone – it’s the media office that Baroness Meacher referred me to, just giving me a “heads up” about a possible interview with Channel 4 News this week. It seems that Channel 4 News have a special interest in cannabis – one of their newsreaders (Jon Snow) participated in a programme about it a couple of years ago… I’m advised to keep my diary clear this Wednesday and Thursday, just in case.
The phone rings again 10 minutes later. This time it’s the media and PR Team at Parkinson’s UK – I volunteered to share my experiences with Parkinson’s with the media as part of Parkinson’s Awareness Week. So we chat for half an hour about me, my attitude towards Parkinson’s medication, my DBS operation, and cannabis. I have probably ruled myself out of any media contact through Parkinson’s UK, because they censored one of my forum posts in the past when I mentioned cannabis and the positive effect it has upon my symptoms – they must have somebody on the board who has interests in one of the big drug companies (but I’m willing to be proven wrong, so I shall wait and see).
I take the dog for her afternoon walk, and try to get back into editing my neighbour’s holiday video, but my heart’s not in it today. I’m still feeling incredibly tired, in spite of the long nights of unbroken sleep I have been getting lately. I find myself fighting off sleep at 4pm, so I guess another early night is on the cards…