2019-05-28 – Extremely tired!

I’m extremely tired from our busy weekend (even though much of it was spent just sitting in the car) so I spend most of the day recovering.  

I received a phone call from the DBS speech therapist (returning my call) and was disappointed (to put it mildly –  enraged might be more accurate) to find out that he hadn’t even applied to Medtronic (the manufacturer of my neurostimulator) to get the code that they need in order to program my device more effectively.  Given that I have been waiting for three months for them to do this, you can understand how I might be just a little upset about it!  I spoke with one of the neurologists on the DBS team, and he said that they would try adjusting my settings in advance of receiving the required code.   So, tomorrow I’m going to travel to the NHNN in London to spend the afternoon with the DBS speech therapist and a neurologist in the hope of alleviating some of the issues that I have been suffering.  

I also received a call from the physiotherapist at North Walsham cottage hospital, offering me some more sessions on the motorised exercise bike – better late than never!

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