I ordered some electronic scales on eBay at the weekend, so that I can accurately measure the thiamine hydrochloride powder that I am going to start taking (see my YouTube video about thiamine hydrochloride high dosage therapy). The scales arrive in the post this morning, so I set about trying to fill some capsules with the powder, and fail miserably! The powder is so fine that it doesn’t flow through the tiny funnel that I use to fill capsules, so I bite the bullet, mix a gram of the powder with a little water and knock it back. It’s horribly bitter (as I had read) but I think it’s bearable – next time I’ll mix it with some fruit juice rather than water, so that should be a little more palatable.
I fill out a questionnaire document downloaded from the Parkinson’s Thiamine HCL Facebook group ready to send off to Doctor Costantini’s team in Italy. The questionnaire catalogs my current symptoms and their severity, so that they can be compared to establish if the treatment has improved them or if my condition has continued to deteriorate. I also need to provide the team with some videos, which I intend to do at the weekend.
So… treatment with high doses of thiamine has started today, 6th March 2019, with a single dose of 1 gram of thiamine – tomorrow I will take 1 gram in the morning and 1 gram in the afternoon, and stick with this dose for two weeks before increasing it.
Just pull the capsule apart and punch each end 3 to 4 times into the powder. This fills up the capsule, and push the ends together. Done