I start the ball rolling by speaking to a case worker at Norman Lamb’s North Walsham office this morning about Norman’s offer to write to my London neurologist to ask her if she would make an Individual Funding Request (for exenatide) which the local CCG have said they would give “due consideration” to. I still believe that the CCG will refuse to allow my doctor to prescribe it, but it is the next logical hoop that I have to jump through. I check through the text of the email that I wrote to Norman yesterday, and then send it to him. Perhaps it’s a waste of my time and effort to respond to the letter that Norman forwarded to me (from the local healthcare trust, setting out the reasons why I shouldn’t be given exenatide) because ultimately the decision is made by the CCG, but their letter contained inaccuracies that I simply couldn’t ignore.
I research parcel couriers for a parcel full of goodies that we want to send to my brother in Nova Scotia – we sent him a similar parcel last year, but this year the courier has listed “all foods” on its list of prohibited items, and couriers who do not have this restriction are almost twice the price! I resign myself to posting through the nose for carriage, and resolve to pack a few more goodies into the box to make it worthwhile.
I’m feeling the cold at the moment (although it really is quite mild for the time of year) so at lunchtime I get the logs in and light the fire.