I spend the day writing to Norman Lamb (my Member of Parliament) in reply to his recent letter and email containing the responses from the Clinical Commissioning Group (CCG) and local healthcare trust regarding the refusal to prescribe exenatide for me. I have been meaning to do this since I received his email last week, but something else always seemed to get priority. Although I expected them to continue to deny this drug to me, I’m really quite annoyed by the language used by the author of the healthcare trust’s response – trivialising the results of the recent clinical trial, and suggesting that I was an unsuitable candidate for the drug because of the severity of my Parkinson’s (determined by the fact that I have had Deep Brain Stimulation surgery which, apparently, is indicative of disease severity). I refrain from being too blunt in my rejection of their version of the truth, and research my facts carefully, although I feel sure that my letter will have absolutely no effect whatsoever.
I get my wife to critique what I have written, and she approves and makes a couple of suggestions to make my point more clearly. I revise it, and will email it to Norman tomorrow.