I wake with the usual left leg tremor. I know I won’t get back to sleep again, but it’s Saturday and I’m having a lie-in. I eventually crawl out of my pit at 9.30am. The sun is shining, although there are a few ominous looking dark clouds.
My wife takes the dog for a walk, while I drink my tea and Nutriblast and check my email. I still have a little dystonia in my right foot, and dyskinesia in my right arm, but tremor is well under control on my right side. There is still some left sided tremor, but only in my leg, and it’s manageable.
We got out to Lidl in North Walsham to get some groceries – my wife remarks that my walking seems a little better, and I’m more upright than I have been lately. She also thinks that I’m a little subdued, and she may be right. I don’t feel particularly “down”, but neither do I feel particularly “up”. Mood is something I really need to be aware of, because I don’t want to get back in the rut that I was in just a few weeks ago. It may, or may not be to do with my device settings – that’s what is so difficult to determine. It could just be that I’m having a few off days with my Parkinson’s Disease, and that I’ll be fine again in a day or two without the need for any intervention. Conversely, it could be my device settings, and things won’t improve until I adjust them. Nobody knows. Not even the experts. Everything is trial and error – suck it and see.
I’ve decided to try to make some progress with my video script today, but won’t be beating myself up if I don’t manage it. I decided (following some remarks from my wife) that I’m putting myself under unnecessary pressure to meet a deadline that only exists in my head.
I manage to finish the script this evening, and my wife checks it over and approves. Now I just have to shoot the video – Monday or Tuesday, while my wife’s at work and I have the house to myself.