2016-10-14 – To tweak or not to tweak…

I’m awake just after 6am – minor back pain, minor tremor (left leg), minor dyskinesia (right arm).  I can’t get back to sleep, but still manage to remain in bed for over 2 hours.  I get up and head downstairs for my cup of tea (I heard my wife putting the kettle on).

I’m a little concerned that my motivation may be affected by my latest settings, but perhaps I’m just tired and still recovering from our day in London on Monday.  Nevertheless, I need to keep an eye on it – I can always revert to my Group “B” settings, which are basically the same as prior to my tune-up (just a couple of very minor adjustments).  My wife hasn’t said anything yet, and she usually sees issues with my settings before I do.  My tremor is a little close to the surface at the moment – mostly well contained, but liable to break out without any warning.  Dystonia has calmed down again after yesterday, when it was a proper nuisance.  Balance is much the same (a bit pants), but generally I’m not too bad at the moment.

The reason I’m questioning my motivation is because I have a lot of work to do on my next video (Side Effects of Deep Brain Stimulation), but I keep putting it off.  I have collected loads of data from various online sources (Facebook pages and a Yahoo Groups Forum), and the next step is to take that data and incorporate it into a script for filming.  I keep finding other things to do.  Today I’m clearing some of the mess that I left in the conservatory following my woodwork attempts of several weeks ago – stacking the wood up into a neat pile, and putting the tools away.  Then I decide to light the woodburner (it’s distinctly chilly here today, and Summer is most definitely over) so I bring in some wood from outside, get the stove fan out of the loft, and stack the kindling  in place.

Woodburner
Woodburner

I vacuum up the debris that came into the house when I brought the wood in, and then light the fire.  By the time my wife comes in from work, the house is nice and cosy, and dinner is in the oven.

I still haven’t tweaked my settings.  The emerging tremor would indicate that some additional voltage is required, but I’m pretty sure that additional voltage will also mean additional dyskinesia, and since both tremor and dyskinesia are manageable at the moment, I’m inclined to just let things be.

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