2016-08-23 – Very shaky day

When I wake up this morning I have the usual tremor in my left leg – nothing of any note in my other limbs.  Generally speaking, I’m feeling pretty good.  By the time I’m dressed and downstairs with a cup of tea in my hands it’s rather a different matter.  One minute my tremor is under control, the next I have a full force shake going on in my right arm, and a mild shake and increased dystonia in my right leg/foot.  I can bring it back under control by initiating movement and applying force of will, but it’s a bit of a nuisance.  Conversely, there’s no sign of the dyskinesia which was becoming a nuisance yesterday.  It’s almost like my neurostimulator is switched off (it isn’t – I turned it off to check if it made a difference, and it most certainly did!), even my wife asked “what’s going on with your tremor this morning?”, so it wasn’t my imagination.  Perhaps it’s a result of increased activity over the last couple of days…  I won’t fiddle around with my settings just yet, although I’m very tempted!

It’s my wife’s youngest son’s birthday today and we are going over to have dinner with him and his girlfriend this evening.  My wife is going shopping in Norwich for a new suitcase this afternoon – we are expecting a grocery delivery and a furniture delivery today, so I am staying at home to look after those (and thankful not to be going shopping in Norwich).

Both deliveries are here by 2pm, so that means I can take the dog out for her afternoon walk.  Before I take her I decide to capture some of my post-DBS tremor and dystonia for use in another DBS video – you have to strike while the iron’s hot!  Not sure where it will fit in with the videos that I currently have planned, but I’m sure it will get used at some point!

 

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