2016-08-06 – Persevering

My daughter is going home this morning, so we are all up bright and early(ish).  I had another good night’s sleep, so the dyskinesia I’m experiencing isn’t causing me to thrash around like it used to do.  I’m still recovering from the trip to London, though – I ache all over, and feel absolutely exhausted.  I take my daughter to Gunton station to catch her train, and then my wife and I head off to a big car boot sale at Aylsham in search of bargains.  We buy some toys for our granddaughter, and some bits and pieces to use in my wife’s new hobby of book making.

We have decided to go to the boat this afternoon, and spend the night aboard, so my wife organises everything while I sit on the sofa and recover from this morning’s exertions.  I haven’t fiddled with my settings at all today, and they do seem to have settled down a bit from yesterday.  Dyskinesia is still there in my right arm, but it’s bearable.  Dystonia is also there but, again, it’s bearable.  Tremor is a feature in my left leg, but is pretty much under control everywhere else. The only thing that appears to be slightly worse is my balance, and I find myself having to catch myself on a frequent basis.  I’m not actually falling, though.

We get to the boat, transfer all of our gear from the car and then run the engine to charge the batteries and heat the water so we can have a shower.  Dinner follows, and then we chill out with a beer or two.

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