I had a very disturbed night last night, at least it felt that way! My FitBit doesn’t agree, and says that I slept solidly. I do know that I was thrashing around and in quite a lot of discomfort with my neck, so that’ll be down to the new settings on my neurostimulator… In fact I’m feeling distinctly “edgy”, my dyskinesia is through the roof (particularly in my neck) and my eyes seem to have a disturbing tendency to slam shut. These settings are the original settings that I had straight after my operation -they caused impulsive behaviour then, but they also gave me the most benefit of any setting that I have had. The theory was that the impulsive behaviour may have been due to the trauma caused by the surgery, so we decided to try these settings again to see what the effects are now. It’s not looking good…
I decide to revert to my previous settings (group ‘A’ on my remote control) for the time being. I’ll try the group ‘B’ settings again a little later on, but definitely not at bedtime!
My dyskinesia is much reduced, which is good. My voice remains strong, which is also good. Perhaps all I really needed was a change from the previous settings. I’ll monitor my symptoms and see how things go – I don’t really want to have to go all the way back to London to be reprogrammed again.