2017-10-27 – Now recovered.

I have a fairly disturbed night, waking up several times, but feel reasonably okay when I get up this morning.  I think I am now recovered from our trip into London (for DBS settings changes at the NHNN) on Monday.

My voice is still an improvement over my previous settings, and my balance, walking, muscular tension/weakness/stiffness are all marginally better, too.  My tremor (left leg) is much worse and is driving me mad.  I have so far resisted making any changes to my settings because I wanted to give the new settings time to settle in, and also I was incredibly tired (which affects my symptoms) from the trip to London.

I throw caution to the wind and increase the left-hand voltage by 0.1v. Immediately I feel the tremor lessen, which pleases me immensely.  I’m not so pleased half an hour later when I feel tremor creeping back into my left leg.  Another 0.1v puts the lid on it for a little while, but I soon feel tremor emerging once more.  I live with it while I script, film and edit my weekly vlog, but after dinner I add another 0.1v to the left side which, although it doesn’t eliminate the tremor, certainly causes it to decrease.  My group “B” settings (the new ones) are now 2.30 volts on the left, and 2.75 volts on the right.  I dare not increase it any further today, so I self-medicate with some cannabis and crack open a beer.

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