I had a lousy night’s sleep. Self-medication helped me get off to sleep without too much trouble, but I was awake and restless many times during the night, and thrashing around a bit with dyskinesia in both my right arm and my neck – most uncomfortable!
My wife is up and out early – she’s babysitting our granddaughter today and has to be in Hevingham (20 minutes away) by 8am. I get up at 8am, wander downstairs and make myself a cup of tea. I’m glad I didn’t muck about with my settings yesterday (which would have resulted in my increasing the voltages) because I think my dyskinesia would have gone through the roof. It’s certainly worse on Group “A” settings than it was on Group “B”. Tremor control does seem a little better, though. Dystonia is very slightly worse, but definitely bearable. Balance and walking are still a bit rubbish, but I’m not tripping or falling, just stumbling from time to time. My mood is slightly better (I’m not quite so withdrawn) and motivation has also improved.
I take the dog for her walk, listen to PopMaster and check email and social media – my video is doing well, over 600,000 views now.
I remember one or two additional details that I wanted to include in my “DBS Side Effects” video, and spend some time researching it on the internet, and then making adjustments to the script that I have already prepared. I had intended doing some filming today, but my wife has returned with our granddaughter, so my “studio” (the lounge) is scattered with toys and various baby paraphernalia, so it will have to wait until another day (tomorrow?).
Evening rolls around. I’m still suffering with dyskinesia, but I’m coping with it so I don’t think I’ll turn the voltages down (just yet). I light the woodburner (it’s definitely feeling Autumnal), and think about a little self-medication…