2016-09-24 – Answering questions!

I slept well last night (with my DBS turned down again), and woke with a good old shake going on in both legs (but mainly the left one).  I turn my neurostimulator back up to calm them down a little, and stay in bed for a little longer.  My wife is checking the YouTube views on my video before she’s even out of bed – almost 300,000 views!  Amazing!

Downstairs, cup of tea, Nutriblast, checking my emails, reading the comments on my YouTube video.  The comments are nice (mainly), and many questions are being asked about me, and about my video.  I decide to take the dog out for a walk, and answer some of the comments when I get back.

I’m typing responses to some comments/questions with the laptop bouncing around because of the tremor still present in my left leg – not easy!  I have reached the limit of adjustment (on the left side) with my current settings (Group “B”) and take the decision to revert to Group “A” settings to see how they compare.  I’m now receiving 1.95v on my left, and 2.15v on my right.  I feel immediately more tremor free, notably in my left leg, and so am going to stick with these settings today and see how things go.  I notice that my walking is a little less good – I feel somewhat wooden!  I don’t seem to be any the worse for balance, speech, energy, mood or motivation.  Dystonia appears to be under control, and dyskinesia seems to be about the same as yesterday.

The laptop has ceased its movement on my legs for the time being, and I spend much of the day replying to questions and deleting some of the more foul-mouthed or irrelevant comments.  I know, from some of the comments, that my video has been of great help to a number of people who are in the same boat as me, and that feels good.

409,000 views, and it’s not even bedtime!

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