I slept well, and wake at 7.30. My left leg is particularly tremor ridden this morning, although my right leg is attempting to keep up with it. Dystonia doesn’t seem too bad so far – definitely manageable.
My son wants to go to the Apple store in Norwich today, so I busy myself with one or two tasks that I need to do before going out, and await their descent from the spare bedroom. I make some tea, package up some kefir grains to post out this afternoon, check on my video (143,000 views this morning) and check my email. I have an email from the DBS nurses at the NHNN offering me a programming appointment on the 3rd October, so I gratefully accept. I set my device back to my daytime values (1.75v left, 2.2v right) and relish the feeling of increased tremor control. My left leg is still shaking, but it’s definitely an improvement. Balance is okay. Mood, motivation and energy are good. Dyskinesia hasn’t kicked in, so that’s a bonus.
My son puts in an appearance, and opts for tea and toast for breakfast (it’s that or nothing, so he chose wisely). His girlfriend appears a little later, after my son has taken her a cup of tea in bed. We leave for Norwich just before 12pm, and do the tour of Chapelfield, taking in the Apple store (where my son got his iPhone updated) and numerous clothing stores (where my son’s girlfriend got her fix), and ending up in some sort of american diner for a plate each of pricey french fries. Tremor has increased significantly in my right leg, and with it has come dystonia, so I increase the voltage on the right hand side of my neurostimulator to 2.4v, which appears to calm the situation down for the time being. I feel dyskinesia kick in in response, but nothing too unmanageable.
We return home, as does my wife, eat dinner (ready meals from Lidl) and then pop over to the Vernon Arms for a drink or two with my favourite nephew, who has dropped in to see my son. Everything (tremor wise) appears to be under control, so no more device adjustments are required – at least until bedtime, when I reduce the voltages again.