2016-09-08 – Positively fatigued!

We are going shopping for baby stuff this morning, so we get up fairly sharpish, and I take the dog for her morning walk before I have had my second cup of tea of the day.  There is a baby “event” at Lidl starting today, and my wife wants to buy some things for our granddaughter, who is a year old next week.  So, we are out of the house and on our way to North Walsham by 9.15am.  When we get to Lidl, I elect to wander around with the shopping list and get the weekly groceries whilst my wife checks out all of the baby stuff.  I do interfere, though, and select a few exotic sounding foods for our granddaughter – we want her to have a varied palate, and there is no time like the present to start on her culinary adventures!

We have a quick scout around Roys, and my wife buys me a trendy T-shirt and we find a present for her ex-husband, whose birthday is the week after our granddaughter’s.

We get back home, unload the car, fill the fridge and freezer with the contents of the car, and then my wife is off to work in Hevingham making a Roman blind for one of her clients.

It was nice to wake up this morning and realise that my left leg was tremor-free.  First time in a long time.  Tremor isn’t far below the surface, but it is below the surface, so thank heavens for small mercies.  Dystonia has receded slightly, and that is also very welcome.  Dyskinesia remains about the same, so it’s manageable.  Balance is fairly rubbish still, and my voice ain’t great, but can’t complain!  My motivation seems reasonable, but my energy is really low today – I’m positively fatigued (if there is such a thing!).   I’m sitting on the sofa this afternoon fighting against my eyelids, which really, really want to close, but I know if I succumb to their will then I’ll be wide awake come bedtime tonight.

I resist the temptation to adjust my neurostimulator today – I think I am at about the maximum voltage that I can take on the current program.  I notice a mildly manic quality to my laugh (from time to time), and the tendency to exaggerated emotions occasionally – something that my wife noticed last night when I got quite angry about something that was relatively trivial.  It all feels a little like the impulsive behaviour that I have experienced previously, and which had freaked my wife out because of the accompanying personality changes.  Definitely something to be avoided.

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