I’m going to change my settings today. I mean totally change them, not just tweak the voltages. I still have quite a lot of tremor on my right side, and my left leg has been shaking away for a while now. When I was re-programmed on 3rd of August, Maricel gave me 2 completely new sets of settings. I originally left the NHNN with Group “A” settings in force, but changed them over to Group “B” fairly quickly because of side effects. I have now been enjoying Group “B” settings for about 3 weeks, and have worked my way up the voltage scale until I hit the maximum (on the left) and aggravated the dyskinesia (on the right). Time to hit Group “A” again!
My wife takes the dog for a good long walk, and I change my device over to Group “A” settings, 1.7v on the left side and 2.0v on the right, just as they were when I left the hospital. I’ll wait for the dyskinesia to attack before I change anything.
We drive to The Range on Longwater Retail Park, just outside Norwich, this afternoon. We are in need of picture frames, and we heard that they have a big selection there. They do have a big selection, but nothing that is exactly what we are looking for, so we opt for buying the frames slightly oversize and then custom making picture mounts the size that we require. By the time we have made our selection it is almost 4pm and the staff are virtually chucking us out of the door in their eagerness to close the store and go home (and I don’t blame them!).
Home. Walk the dog. Dinner (leftovers from yesterday’s barbecue).
My wife busies herself cutting picture mounts. I collapse in a heap on the sofa.
The dreaded dyskinesia hasn’t reared it’s ugly head as yet, but tremor is still significant in my left foot and is there also (to a lesser degree) in my right arm. My right arm feels very weak. Dystonia is slightly more prevalent in my right foot – still bearable, though. On the plus side, my wife says I appear much happier this afternoon, and my voice doesn’t seem so weak!