It’s the third morning in a row that we wake up to bright sunshine, so Summer is officially here. It’s just a matter of time before someone moans that it’s too hot! Me? I never moan about the weather being too nice. I love the warmth and sunshine – there are plenty of other things to moan about if you must, but we have so little good weather in this country.
I must apply myself to finding a new mooring for my boat this week. I need to move it by the beginning of August, so there really isn’t that much time. I’m going to put a couple of “Wanted” ads on the internet today and hope that I get some sort of response.
My tremor and dystonia are relatively calm this morning, but the usual pattern emerges. Both get gradually more prominent as the morning wears on, and by the time lunch comes around I’m feeling in need of some kind of relief. 1pm and I change my neurostimulator over to Group ‘B’ settings. I love the feeling I get when I change settings. It’s a tingle that floods my body; I immediately stop shaking and my right foot relaxes. It doesn’t last very long though, and I have significant tremor and dystonia again before the clock strikes 2pm. I really need to go back to see Joseph at the NHNN, but it’s an expense I can ill afford. I checked the train fares last night, and the cheapest fares are the 2nd and 3rd of August. My daughter is coming to stay with us for a few days commencing 1st August, so I really don’t want to be away for a day while she is here. My son is coming to stay for a few days at the beginning of August also, and wants as all to go to the Blues Bar while he is here. Perhaps we can tie in a visit to the hospital at the same time? He also wanted me to pick up the guitar again and has challenged me to learn something new now that my tremor isn’t so severe – I will have to see what I can do.
I persevere with the Group ‘B’ settings until almost 7pm. By then I have some dyskinesia in my right arm and am fairly uncomfortable, so it’s a relief to go back to Group ‘A’.
Hi Ian
I’ve just been catching up on your July blogs. Interesting reading as usual.
I’m fascinated by the way you can switch the output of your stimulator, nobody has mentioned this possibility to me. It must give you a sense of having at least some control even if you think some adjustments need to be made.
I look forward to reading more.
Regards
Debbie.
Hi Debbie. Being able to adjust stimulation is an absolute must, in my opinion. Requirements for stimulation can vary from day to day, and hour to hour sometimes. It’s a relief to be able to switch to another group of settings when the current settings are not working so effectively, or are causing side-effects. Ian