I tried turning my neurostimulator off last night to see if the new settings were causing me to have difficulty in falling asleep, but it was just as difficult to fall asleep with the tremor running riot. Perhaps it would have been better if I had self-medicated before going to bed, but by the time I thought of that, I couldn’t be bothered to go back downstairs. Anyway, I did fall asleep eventually, and slept pretty well until 5am, when I turned my device on (Group ‘A’ settings!) and then dozed until 9.30am – lazy git!
It’s only when I go to get out of bed that I’m reminded that I might possibly have overdone things yesterday. Every fibre of me aches, and my back, arms, legs, neck are all as stiff as a very stiff thing. It’s lucky that I am married to the most fantastic woman on earth who makes me my tea and Nutriblast, and allows me to slob out on the sofa while she goes about finishing off the cast iron fireplace in our bedroom, does the washing, vacuums everywhere, etc. etc.
We are going out to see my wife’s family this afternoon – it’s her niece’s birthday and there’s a bit of a get-together over at her brother’s house. I change my settings to Group ‘B’ because of the superior tremor control, but also because my wife says that I am more cheerful on those settings (apparently I’m rather monosyllabic on the Group ‘A’ settings). All is well for the first couple of hours, but then dyskinesia in my neck becomes a bit of a nuisance, and I have to switch back to Group ‘A’ again. I think we will have to book a return visit to the NHNN for reprogramming sooner rather than later.
As the day goes on my limbs feel as though they are loosening up, although I am having some pretty uncomfortable cramps in my hip. Hopefully I’ll be feeling a bit more normal by tomorrow.