I had a lousy night. I couldn’t get to sleep, and just lay there wide awake for over 2 and a half hours. I wasn’t in any discomfort. Had no tremor to speak of. Just wasn’t able to go to sleep. When I did eventually drop off, I woke a number of times so felt as if I’d been awake for most of the night. On the plus side, I didn’t thrash around or shout out in my sleep! I didn’t get up until gone 8am.
I notice that tremor has crept back slightly in my left leg, and the merest suggestion of dyskinesia in my right arm. So much better than prior to yesterday’s tune-up, though! I’m exhausted after yesterday’s travelling and last night’s lack of sleep, and come lunchtime I’m fighting to keep my eyes open. I resist the temptation to have a quick 40 winks – if I sleep now, I’m worried that I won’t sleep tonight. I don’t know if my energy or motivation has been positively affected just yet – it’s difficult to know, when I am feeling so fatigued in any case.
I now have a complete new set of settings – Group ‘A’ on my remote control. I am currently receiving 1.5v on my left side and 2.5v on my right side, but utilising a different set of contacts on the electrodes than those in Group ‘B’. Group ‘B’ settings are my previous settings, in case I need to revert to them at some stage. I’m not going to fiddle with any settings for at least a couple of days, let everything settle down again and then see where we are at. It’s a major relief to have almost eliminated the dyskinesia I was suffering, and having the tremor more under control is most welcome as well. Dystonia is still nagging at my right foot, but it is manageable. My balance seems a little better today, although my voice sounds a little indistinct (to me). Some of this may be due to my current tiredness.