Had an even better night last night. In fact, probably the best night since leaving hospital. I woke at 6.30am, and dozed until 8.30am when I crept out of bed (so as not to wake my wife), switched the power on, got dressed and went downstairs to feed the dog and make a brew.
I have 2 groups of settings on my device – Group ‘A’ and Group ‘B’. I am currently on the minimum voltage settings of Group ‘B’ (left 1.1v, right 1.6v), having tried as many of the different settings as possible, and keeping note of my responses to each of them. I now feel that the time has come to do the same with the Group ‘A’ settings, so switch my device over to Group ‘A’ and reduce the left and right voltages to the minimum permissible – 1.6v on the left, 2.1v on the right.
I feel some tingling in my extremities as the new settings take effect, and my tremor seems to be reduced a tad on both sides. I’m going to explore the settings for my right side first, but will leave it until I go to bed tonight before increasing the voltage.
Whoops! The higher voltages of Group ‘A’ have brought dyskinesia on with a vengeance in my right arm. Also in my neck, but nowhere near as severe. Have to see how it goes…
I fight the twitching during a trip out with my wife to the local garden centre, and also whilst strimming the overgrown paths around our allotment.
As part of the Norfolk & Norwich Open Studios, my wife and I go to see Sheila Robinson, a local artist and friend of ours. While sitting and chatting with Sheila and her husband, my dyskinesia is getting so strong that I decide to go back to the lower voltages on Group ‘B’. Immediately it abates, and I’m feeling better. Tremor returns, but it’s all manageable. When we return home, I switch back to Group ‘A’ and the dyskinesia returns in an instant. I’ll stick with it until bedtime, but I honestly cannot see me staying with Group ‘A’ settings unless things improve on that front.